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Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics
BACKGROUND AND OBJECTIVES: Caregivers need to understand their health status and the disabilities of the care recipient to engage in effective health management. Infographics tailored with personal health data are a promising approach to facilitating comprehension, particularly for individuals with...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6857756/ https://www.ncbi.nlm.nih.gov/pubmed/31185098 http://dx.doi.org/10.1093/geront/gnz085 |
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author | Arcia, Adriana Suero-Tejeda, Niurka Spiegel-Gotsch, Nicole Luchsinger, Jose A Mittelman, Mary Bakken, Suzanne |
author_facet | Arcia, Adriana Suero-Tejeda, Niurka Spiegel-Gotsch, Nicole Luchsinger, Jose A Mittelman, Mary Bakken, Suzanne |
author_sort | Arcia, Adriana |
collection | PubMed |
description | BACKGROUND AND OBJECTIVES: Caregivers need to understand their health status and the disabilities of the care recipient to engage in effective health management. Infographics tailored with personal health data are a promising approach to facilitating comprehension, particularly for individuals with low health literacy/limited English proficiency. Such approaches may be especially important for dementia caregivers given the high care burden. RESEARCH DESIGN AND METHODS: Guided by the Health Belief Model and the Data-Frame Theory of Sensemaking, we conducted iterative participatory design sessions with Hispanic family caregivers (N = 16) of persons with dementia. We created multiple prototype infographic designs to display scores on validated instruments of topics such as caregiving burden, overall health, and psychological distress. We retained and refined designs participants judged to be easily comprehensible. Analysis focused on identifying the graphical elements that contributed to the comprehensibility of designs and on evaluating participants’ reactions to the designs. RESULTS: Successful infographics used intuitive scaling consistent with caregivers’ perspective of dementia as inevitable decline. Participants reacted to infographics by describing the self-management actions they would take to address the health issue at hand. DISCUSSION AND IMPLICATIONS: Tailored infographics supported caregivers’ comprehension of their health status and served as cues to engaging in self-management. As such, they should be presented in the context of informational support that can facilitate selection of appropriate next steps. This can mitigate the potential mental and physical health consequences of caregiving and enable caregivers to continue to care for their relatives with dementia with less damage to their own well-being. |
format | Online Article Text |
id | pubmed-6857756 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-68577562019-11-20 Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics Arcia, Adriana Suero-Tejeda, Niurka Spiegel-Gotsch, Nicole Luchsinger, Jose A Mittelman, Mary Bakken, Suzanne Gerontologist Virtual Collection: Caregiver Well-Being BACKGROUND AND OBJECTIVES: Caregivers need to understand their health status and the disabilities of the care recipient to engage in effective health management. Infographics tailored with personal health data are a promising approach to facilitating comprehension, particularly for individuals with low health literacy/limited English proficiency. Such approaches may be especially important for dementia caregivers given the high care burden. RESEARCH DESIGN AND METHODS: Guided by the Health Belief Model and the Data-Frame Theory of Sensemaking, we conducted iterative participatory design sessions with Hispanic family caregivers (N = 16) of persons with dementia. We created multiple prototype infographic designs to display scores on validated instruments of topics such as caregiving burden, overall health, and psychological distress. We retained and refined designs participants judged to be easily comprehensible. Analysis focused on identifying the graphical elements that contributed to the comprehensibility of designs and on evaluating participants’ reactions to the designs. RESULTS: Successful infographics used intuitive scaling consistent with caregivers’ perspective of dementia as inevitable decline. Participants reacted to infographics by describing the self-management actions they would take to address the health issue at hand. DISCUSSION AND IMPLICATIONS: Tailored infographics supported caregivers’ comprehension of their health status and served as cues to engaging in self-management. As such, they should be presented in the context of informational support that can facilitate selection of appropriate next steps. This can mitigate the potential mental and physical health consequences of caregiving and enable caregivers to continue to care for their relatives with dementia with less damage to their own well-being. Oxford University Press 2019-09 2019-06-11 /pmc/articles/PMC6857756/ /pubmed/31185098 http://dx.doi.org/10.1093/geront/gnz085 Text en © The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distribution of the work, in any medium, provided the original work is not altered or transformed in any way, and that the work is properly cited. For commercial re-use, please contact journals.permissions@oup.com |
spellingShingle | Virtual Collection: Caregiver Well-Being Arcia, Adriana Suero-Tejeda, Niurka Spiegel-Gotsch, Nicole Luchsinger, Jose A Mittelman, Mary Bakken, Suzanne Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics |
title | Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics |
title_full | Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics |
title_fullStr | Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics |
title_full_unstemmed | Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics |
title_short | Helping Hispanic Family Caregivers of Persons With Dementia “Get the Picture” About Health Status Through Tailored Infographics |
title_sort | helping hispanic family caregivers of persons with dementia “get the picture” about health status through tailored infographics |
topic | Virtual Collection: Caregiver Well-Being |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6857756/ https://www.ncbi.nlm.nih.gov/pubmed/31185098 http://dx.doi.org/10.1093/geront/gnz085 |
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