Experiences of patients with Poland syndrome of diagnosis and care in Italy: a pilot survey

BACKGROUND: Poland Syndrome (PS) is a rare congenital malformation involving functional and aesthetic impairments. Early diagnosis and timely therapeutic approaches play an important role in improving the quality of life of patients and kindred. This study aims to explore healthcare experiences of t...

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Detalles Bibliográficos
Autores principales: Baldelli, Ilaria, Gallo, Fabio, Crimi, Marco, Fregatti, Piero, Mellini, Lorenzo, Santi, Pierluigi, Ciliberti, Rosagemma
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6873522/
https://www.ncbi.nlm.nih.gov/pubmed/31753026
http://dx.doi.org/10.1186/s13023-019-1253-8

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6873522/
https://www.ncbi.nlm.nih.gov/pubmed/31753026
http://dx.doi.org/10.1186/s13023-019-1253-8

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