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Experiences of patients with Poland syndrome of diagnosis and care in Italy: a pilot survey
BACKGROUND: Poland Syndrome (PS) is a rare congenital malformation involving functional and aesthetic impairments. Early diagnosis and timely therapeutic approaches play an important role in improving the quality of life of patients and kindred. This study aims to explore healthcare experiences of t...
| Autores principales: | , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6873522/ https://www.ncbi.nlm.nih.gov/pubmed/31753026 http://dx.doi.org/10.1186/s13023-019-1253-8 |