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“We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs

BACKGROUND: In the context of the current US opioid crisis, people who inject drugs (PWID) are increasingly researched, but their ability to tell their own stories may be limited. Photovoice is a participatory action research method that allows participants to use photography to directly depict thei...

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Autores principales: Drainoni, Mari-Lynn, Childs, Ellen, Biello, Katie B., Biancarelli, Dea L., Edeza, Alberto, Salhaney, Peter, Mimiaga, Matthew J., Bazzi, Angela R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6882205/
https://www.ncbi.nlm.nih.gov/pubmed/31775757
http://dx.doi.org/10.1186/s12954-019-0334-2
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author Drainoni, Mari-Lynn
Childs, Ellen
Biello, Katie B.
Biancarelli, Dea L.
Edeza, Alberto
Salhaney, Peter
Mimiaga, Matthew J.
Bazzi, Angela R.
author_facet Drainoni, Mari-Lynn
Childs, Ellen
Biello, Katie B.
Biancarelli, Dea L.
Edeza, Alberto
Salhaney, Peter
Mimiaga, Matthew J.
Bazzi, Angela R.
author_sort Drainoni, Mari-Lynn
collection PubMed
description BACKGROUND: In the context of the current US opioid crisis, people who inject drugs (PWID) are increasingly researched, but their ability to tell their own stories may be limited. Photovoice is a participatory action research method that allows participants to use photography to directly depict their experiences. METHODS: We conducted interviews with PWID (n = 33) as part of a qualitative study on the health needs of PWID in the USA to explore interest and acceptability of photovoice as a potential research method and way to share their voices. RESULTS: Participants identified facilitators and barriers to participating in a future photovoice project. Facilitators included a chance to depict one’s unique experience, help others in need by sharing one’s own story, and photography being a more “comfortable” way to tell their stories than traditional research methods. Barriers included safety concerns, embarrassment, and ability to retain cameras. Participants also identified areas of sensitivity related to documenting drug use. CONCLUSIONS: While we found broad acceptability of photovoice, barriers would need to be addressed and additional training and support for research staff and potential participants related to the ethics of public photography and engaging PWID in photovoice research would be required.
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spelling pubmed-68822052019-12-03 “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs Drainoni, Mari-Lynn Childs, Ellen Biello, Katie B. Biancarelli, Dea L. Edeza, Alberto Salhaney, Peter Mimiaga, Matthew J. Bazzi, Angela R. Harm Reduct J Research BACKGROUND: In the context of the current US opioid crisis, people who inject drugs (PWID) are increasingly researched, but their ability to tell their own stories may be limited. Photovoice is a participatory action research method that allows participants to use photography to directly depict their experiences. METHODS: We conducted interviews with PWID (n = 33) as part of a qualitative study on the health needs of PWID in the USA to explore interest and acceptability of photovoice as a potential research method and way to share their voices. RESULTS: Participants identified facilitators and barriers to participating in a future photovoice project. Facilitators included a chance to depict one’s unique experience, help others in need by sharing one’s own story, and photography being a more “comfortable” way to tell their stories than traditional research methods. Barriers included safety concerns, embarrassment, and ability to retain cameras. Participants also identified areas of sensitivity related to documenting drug use. CONCLUSIONS: While we found broad acceptability of photovoice, barriers would need to be addressed and additional training and support for research staff and potential participants related to the ethics of public photography and engaging PWID in photovoice research would be required. BioMed Central 2019-11-27 /pmc/articles/PMC6882205/ /pubmed/31775757 http://dx.doi.org/10.1186/s12954-019-0334-2 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research
Drainoni, Mari-Lynn
Childs, Ellen
Biello, Katie B.
Biancarelli, Dea L.
Edeza, Alberto
Salhaney, Peter
Mimiaga, Matthew J.
Bazzi, Angela R.
“We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_full “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_fullStr “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_full_unstemmed “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_short “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_sort “we don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6882205/
https://www.ncbi.nlm.nih.gov/pubmed/31775757
http://dx.doi.org/10.1186/s12954-019-0334-2
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