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Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone

The paper considers local responses to the introduction of an Ebola Treatment Centre in eastern Sierra Leone during the West African epidemic of 2014–15. Our study used qualitative methods consisting of focus groups and interviews, to gather responses from patients, members of the families of surviv...

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Autores principales: Richards, Paul, Mokuwa, Esther, Welmers, Pleun, Maat, Harro, Beisel, Ulrike
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6886773/
https://www.ncbi.nlm.nih.gov/pubmed/31790420
http://dx.doi.org/10.1371/journal.pone.0224511
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author Richards, Paul
Mokuwa, Esther
Welmers, Pleun
Maat, Harro
Beisel, Ulrike
author_facet Richards, Paul
Mokuwa, Esther
Welmers, Pleun
Maat, Harro
Beisel, Ulrike
author_sort Richards, Paul
collection PubMed
description The paper considers local responses to the introduction of an Ebola Treatment Centre in eastern Sierra Leone during the West African epidemic of 2014–15. Our study used qualitative methods consisting of focus groups and interviews, to gather responses from patients, members of the families of survivors and deceased victims of the disease, social liaison workers from the centre, and members of the general public. The data indicate that scepticism and resistance were widespread at the outset, but that misconceptions were replaced, in the minds of those directly affected by the disease, by more positive later assessments. Social workers, and social contacts of families with workers in the centre, helped reshape these perceptions, but a major factor was direct experience of the disease. This is apparent in the positive endorsements by survivors and families who had members taken to the facility. Even relatives of deceased victims agreed that the case-handling centre was valuable. However, we also present evidence of continuing scepticism in the minds of members of the general public, who continue to suspect that Ebola was a crisis manufactured for external benefit. Our conclusions stress the importance of better connectivity between communities and Ebola facilities to facilitate experiential learning. There is also a need to address the wider cognitive shock caused by a well-funded Ebola health initiative arriving in communities with a long history of inadequate health care. Restoring trust in medicine requires Ebola Virus Disease to be re-contextualized within a broader framework of concern for the health of all citizens.
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spelling pubmed-68867732019-12-13 Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone Richards, Paul Mokuwa, Esther Welmers, Pleun Maat, Harro Beisel, Ulrike PLoS One Research Article The paper considers local responses to the introduction of an Ebola Treatment Centre in eastern Sierra Leone during the West African epidemic of 2014–15. Our study used qualitative methods consisting of focus groups and interviews, to gather responses from patients, members of the families of survivors and deceased victims of the disease, social liaison workers from the centre, and members of the general public. The data indicate that scepticism and resistance were widespread at the outset, but that misconceptions were replaced, in the minds of those directly affected by the disease, by more positive later assessments. Social workers, and social contacts of families with workers in the centre, helped reshape these perceptions, but a major factor was direct experience of the disease. This is apparent in the positive endorsements by survivors and families who had members taken to the facility. Even relatives of deceased victims agreed that the case-handling centre was valuable. However, we also present evidence of continuing scepticism in the minds of members of the general public, who continue to suspect that Ebola was a crisis manufactured for external benefit. Our conclusions stress the importance of better connectivity between communities and Ebola facilities to facilitate experiential learning. There is also a need to address the wider cognitive shock caused by a well-funded Ebola health initiative arriving in communities with a long history of inadequate health care. Restoring trust in medicine requires Ebola Virus Disease to be re-contextualized within a broader framework of concern for the health of all citizens. Public Library of Science 2019-12-02 /pmc/articles/PMC6886773/ /pubmed/31790420 http://dx.doi.org/10.1371/journal.pone.0224511 Text en © 2019 Richards et al http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Richards, Paul
Mokuwa, Esther
Welmers, Pleun
Maat, Harro
Beisel, Ulrike
Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone
title Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone
title_full Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone
title_fullStr Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone
title_full_unstemmed Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone
title_short Trust, and distrust, of Ebola Treatment Centers: A case-study from Sierra Leone
title_sort trust, and distrust, of ebola treatment centers: a case-study from sierra leone
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6886773/
https://www.ncbi.nlm.nih.gov/pubmed/31790420
http://dx.doi.org/10.1371/journal.pone.0224511
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