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At the grassroots of home and community-based aged care: strategies for successful consumer engagement

OBJECTIVES: (1) To describe the processes used to plan and conduct a stakeholder forum in aged care as a means of informing future uptake of consumer participatory research. (2) To discuss how capturing and drawing on stakeholders’ experiences of aged care can generate new research ideas and inform...

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Autores principales: Brett, Lindsey, Siette, Joyce, Nguyen, Amy, Jorgensen, Mikaela, Miao, Melissa, Westbrook, Johanna, Lee, Winifred, Gow, Edwina, Hourihan, Fleur, Georgiou, Andrew
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6886916/
https://www.ncbi.nlm.nih.gov/pubmed/31753868
http://dx.doi.org/10.1136/bmjopen-2018-028754
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author Brett, Lindsey
Siette, Joyce
Nguyen, Amy
Jorgensen, Mikaela
Miao, Melissa
Westbrook, Johanna
Lee, Winifred
Gow, Edwina
Hourihan, Fleur
Georgiou, Andrew
author_facet Brett, Lindsey
Siette, Joyce
Nguyen, Amy
Jorgensen, Mikaela
Miao, Melissa
Westbrook, Johanna
Lee, Winifred
Gow, Edwina
Hourihan, Fleur
Georgiou, Andrew
author_sort Brett, Lindsey
collection PubMed
description OBJECTIVES: (1) To describe the processes used to plan and conduct a stakeholder forum in aged care as a means of informing future uptake of consumer participatory research. (2) To discuss how capturing and drawing on stakeholders’ experiences of aged care can generate new research ideas and inform the delivery of more person-centred aged care services. KEY PRINCIPLES OF CONSUMER ENGAGEMENT: A stakeholder forum was conducted as part of Ageing Well, a 2-year project evaluating the value and impact of social participation and quality of life tools as part of routine community aged care assessments at a large Australian provider. The forum was codesigned with community aged care clients and care coordinators and aimed to coproduce implementation strategies with a targeted representation of stakeholders. The stakeholder forum was developed using five key principles of consumer engagement activities: purposeful, inclusive, timely, transparent and respectful. The forum fostered an environment of mutual respect and collective inquiry to encourage contributions from all participants. This article outlines practical guidance on using a consumer engagement framework and the lessons learnt. DISCUSSION: The stakeholder forum facilitated an understanding of consumers’ needs and existing gaps in aged care services and the circumstances that can enable or hinder the delivery and implementation of these services. This collective information can guide future research and policy at institutional, regional and national committees that relate to aged care. TRIAL REGISTRATION NUMBER: ACTRN12617001212347
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spelling pubmed-68869162019-12-04 At the grassroots of home and community-based aged care: strategies for successful consumer engagement Brett, Lindsey Siette, Joyce Nguyen, Amy Jorgensen, Mikaela Miao, Melissa Westbrook, Johanna Lee, Winifred Gow, Edwina Hourihan, Fleur Georgiou, Andrew BMJ Open Health Services Research OBJECTIVES: (1) To describe the processes used to plan and conduct a stakeholder forum in aged care as a means of informing future uptake of consumer participatory research. (2) To discuss how capturing and drawing on stakeholders’ experiences of aged care can generate new research ideas and inform the delivery of more person-centred aged care services. KEY PRINCIPLES OF CONSUMER ENGAGEMENT: A stakeholder forum was conducted as part of Ageing Well, a 2-year project evaluating the value and impact of social participation and quality of life tools as part of routine community aged care assessments at a large Australian provider. The forum was codesigned with community aged care clients and care coordinators and aimed to coproduce implementation strategies with a targeted representation of stakeholders. The stakeholder forum was developed using five key principles of consumer engagement activities: purposeful, inclusive, timely, transparent and respectful. The forum fostered an environment of mutual respect and collective inquiry to encourage contributions from all participants. This article outlines practical guidance on using a consumer engagement framework and the lessons learnt. DISCUSSION: The stakeholder forum facilitated an understanding of consumers’ needs and existing gaps in aged care services and the circumstances that can enable or hinder the delivery and implementation of these services. This collective information can guide future research and policy at institutional, regional and national committees that relate to aged care. TRIAL REGISTRATION NUMBER: ACTRN12617001212347 BMJ Publishing Group 2019-11-21 /pmc/articles/PMC6886916/ /pubmed/31753868 http://dx.doi.org/10.1136/bmjopen-2018-028754 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Health Services Research
Brett, Lindsey
Siette, Joyce
Nguyen, Amy
Jorgensen, Mikaela
Miao, Melissa
Westbrook, Johanna
Lee, Winifred
Gow, Edwina
Hourihan, Fleur
Georgiou, Andrew
At the grassroots of home and community-based aged care: strategies for successful consumer engagement
title At the grassroots of home and community-based aged care: strategies for successful consumer engagement
title_full At the grassroots of home and community-based aged care: strategies for successful consumer engagement
title_fullStr At the grassroots of home and community-based aged care: strategies for successful consumer engagement
title_full_unstemmed At the grassroots of home and community-based aged care: strategies for successful consumer engagement
title_short At the grassroots of home and community-based aged care: strategies for successful consumer engagement
title_sort at the grassroots of home and community-based aged care: strategies for successful consumer engagement
topic Health Services Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6886916/
https://www.ncbi.nlm.nih.gov/pubmed/31753868
http://dx.doi.org/10.1136/bmjopen-2018-028754
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