Cutaneous neurofibromas: patients’ medical burden, current management and therapeutic expectations: results from an online European patient community survey

BACKGROUND: Neurofibromatosis type 1 is an inherited condition with variable phenotypic expression and a high medical and social burden. The objectives of this patient survey were to better understand the real-world experiences of patients living with cutaneous neurofibromas (cNF), to perceive their...

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Detalles Bibliográficos
Autores principales: Guiraud, Marlene, Bouroubi, Athmane, Beauchamp, Roxane, Bocquet, Arnaud, Grégoire, Jean-Marc, Rauly-Lestienne, Isabelle, Blanco, Ignacio, Wolkenstein, Pierre, Schmitt, Anne-Marie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6894276/
https://www.ncbi.nlm.nih.gov/pubmed/31801570
http://dx.doi.org/10.1186/s13023-019-1265-4

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