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Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study
BACKGROUND: Numerous studies of community reintegration (CR) in traumatic brain injury (TBI) have been conducted in civilian populations, but research is limited in veteran and military service member populations. Little is known about how knowledge from civilian studies translates into veterans’ ex...
Autores principales: | , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6898887/ https://www.ncbi.nlm.nih.gov/pubmed/31755868 http://dx.doi.org/10.2196/14170 |
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author | Melillo, Christine Downs, Kiersten Dillahunt-Aspillaga, Christina Lind, Jason Besterman-Dahan, Karen Hahm, Bridget Antinori, Nicole Elnitsky, Christine Sander, Angelle M Belanger, Heather G Toyinbo, Peter Powell-Cope, Gail |
author_facet | Melillo, Christine Downs, Kiersten Dillahunt-Aspillaga, Christina Lind, Jason Besterman-Dahan, Karen Hahm, Bridget Antinori, Nicole Elnitsky, Christine Sander, Angelle M Belanger, Heather G Toyinbo, Peter Powell-Cope, Gail |
author_sort | Melillo, Christine |
collection | PubMed |
description | BACKGROUND: Numerous studies of community reintegration (CR) in traumatic brain injury (TBI) have been conducted in civilian populations, but research is limited in veteran and military service member populations. Little is known about how knowledge from civilian studies translates into veterans’ experiences and needs. The US Department of Veterans Health Administration (VHA) recognizes the distinctive health care needs of post-9/11 veteran and military service members, particularly with TBI, including the need to bridge health and rehabilitation-related services from acute care and inpatient settings to veteran and military service members’ homes and communities to facilitate CR. OBJECTIVE: The goal of this study is to better understand the experiences of veterans with complicated mild, moderate, or severe TBI; their families; and CR workers as veterans and servicemembers transition to and sustain living in communities. This paper describes the rationale, design, and methods used to reach this goal. METHODS: This five-year longitudinal mixed methods study uses both a community-engaged research (CEnR) approach and an ethnographic approach. The sample includes 30 veterans and service members with TBI, 13 family caregivers, 11 CR specialists, 16 key stakeholders, and 82 community events. Interviews and observations are coded and analyzed using hierarchical coding schemes and thematic analysis. Analyses include data from surveys, interviews, and participant observations. Content analysis is used to highlight the complex social context of reintegration and to triangulate quantitative data. Egocentric (personal) social network analysis is used to examine the support system a veteran or service member has in place to facilitate reintegration. RESULTS: Study enrollment and data collection are completed. Data analyses are underway. CONCLUSIONS: The results of this study may provide a heightened understanding of environmental factors affecting CR in complicated mild, moderate, or severe TBI. Veteran, servicemember and family voices and insights provide VHA clinicians and policy makers with an ecological view of CR that is grounded in the life experiences of veterans, military service members, and families. The results of this study provide a roadmap for designing and testing interventions to maximize CR in a variety of domains. The longitudinal ethnographic approach allows for capturing detailed experiences within the naturalistic context. CEnR allows collaborative assessment of the social context of reintegration with community members. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/14170 |
format | Online Article Text |
id | pubmed-6898887 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-68988872019-12-23 Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study Melillo, Christine Downs, Kiersten Dillahunt-Aspillaga, Christina Lind, Jason Besterman-Dahan, Karen Hahm, Bridget Antinori, Nicole Elnitsky, Christine Sander, Angelle M Belanger, Heather G Toyinbo, Peter Powell-Cope, Gail JMIR Res Protoc Protocol BACKGROUND: Numerous studies of community reintegration (CR) in traumatic brain injury (TBI) have been conducted in civilian populations, but research is limited in veteran and military service member populations. Little is known about how knowledge from civilian studies translates into veterans’ experiences and needs. The US Department of Veterans Health Administration (VHA) recognizes the distinctive health care needs of post-9/11 veteran and military service members, particularly with TBI, including the need to bridge health and rehabilitation-related services from acute care and inpatient settings to veteran and military service members’ homes and communities to facilitate CR. OBJECTIVE: The goal of this study is to better understand the experiences of veterans with complicated mild, moderate, or severe TBI; their families; and CR workers as veterans and servicemembers transition to and sustain living in communities. This paper describes the rationale, design, and methods used to reach this goal. METHODS: This five-year longitudinal mixed methods study uses both a community-engaged research (CEnR) approach and an ethnographic approach. The sample includes 30 veterans and service members with TBI, 13 family caregivers, 11 CR specialists, 16 key stakeholders, and 82 community events. Interviews and observations are coded and analyzed using hierarchical coding schemes and thematic analysis. Analyses include data from surveys, interviews, and participant observations. Content analysis is used to highlight the complex social context of reintegration and to triangulate quantitative data. Egocentric (personal) social network analysis is used to examine the support system a veteran or service member has in place to facilitate reintegration. RESULTS: Study enrollment and data collection are completed. Data analyses are underway. CONCLUSIONS: The results of this study may provide a heightened understanding of environmental factors affecting CR in complicated mild, moderate, or severe TBI. Veteran, servicemember and family voices and insights provide VHA clinicians and policy makers with an ecological view of CR that is grounded in the life experiences of veterans, military service members, and families. The results of this study provide a roadmap for designing and testing interventions to maximize CR in a variety of domains. The longitudinal ethnographic approach allows for capturing detailed experiences within the naturalistic context. CEnR allows collaborative assessment of the social context of reintegration with community members. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/14170 JMIR Publications 2019-11-22 /pmc/articles/PMC6898887/ /pubmed/31755868 http://dx.doi.org/10.2196/14170 Text en ©Christine Melillo, Kiersten Downs, Christina Dillahunt-Aspillaga, Jason Lind, Karen Besterman-Dahan, Bridget Hahm, Nicole Antinori, Christine Elnitsky, Angelle M Sander, Heather G Belanger, Peter Toyinbo, Gail Powell-Cope. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 22.11.2019. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included. |
spellingShingle | Protocol Melillo, Christine Downs, Kiersten Dillahunt-Aspillaga, Christina Lind, Jason Besterman-Dahan, Karen Hahm, Bridget Antinori, Nicole Elnitsky, Christine Sander, Angelle M Belanger, Heather G Toyinbo, Peter Powell-Cope, Gail Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study |
title | Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study |
title_full | Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study |
title_fullStr | Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study |
title_full_unstemmed | Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study |
title_short | Action Ethnography of Community Reintegration for Veterans and Military Service Members With Traumatic Brain Injury: Protocol for a Mixed Methods Study |
title_sort | action ethnography of community reintegration for veterans and military service members with traumatic brain injury: protocol for a mixed methods study |
topic | Protocol |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6898887/ https://www.ncbi.nlm.nih.gov/pubmed/31755868 http://dx.doi.org/10.2196/14170 |
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