Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

BACKGROUND: Using social media for research purposes is novel and challenging in terms of recruitment, participant knowledge about the research process, and ethical issues. This paper provides insight into the recruitment of European parents of children with specific congenital anomalies to engage i...

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Detalles Bibliográficos
Autores principales: Sinclair, Marlene, McCullough, Julie EM, Elliott, David, Latos-Bielenska, Anna, Braz, Paula, Cavero-Carbonell, Clara, Jamry-Dziurla, Anna, João Santos, Ana, Páramo-Rodríguez, Lucía
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2019
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6902131/
https://www.ncbi.nlm.nih.gov/pubmed/31763986
http://dx.doi.org/10.2196/15847

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