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Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia

BACKGROUND AND AIMS: Health-related quality of life (HRQOL) has garnered increasing interest especially for health care providers and researchers. The study aims to evaluate the HRQOL in parents of congenital heart disease (CHD) children, and to clarify the effect of the disease severity on the outc...

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Autores principales: Khoshhal, Saad, Al-Harbi, Khaled, Al-Mozainy, Ibrahim, Al-Ghamdi, Saeed, Aselan, Adnan, Allugmani, Mohammad, Salem, Sherif, El-Agamy, Dina, Abo-Haded, Hany
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6915919/
https://www.ncbi.nlm.nih.gov/pubmed/31842888
http://dx.doi.org/10.1186/s12955-019-1249-z
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author Khoshhal, Saad
Al-Harbi, Khaled
Al-Mozainy, Ibrahim
Al-Ghamdi, Saeed
Aselan, Adnan
Allugmani, Mohammad
Salem, Sherif
El-Agamy, Dina
Abo-Haded, Hany
author_facet Khoshhal, Saad
Al-Harbi, Khaled
Al-Mozainy, Ibrahim
Al-Ghamdi, Saeed
Aselan, Adnan
Allugmani, Mohammad
Salem, Sherif
El-Agamy, Dina
Abo-Haded, Hany
author_sort Khoshhal, Saad
collection PubMed
description BACKGROUND AND AIMS: Health-related quality of life (HRQOL) has garnered increasing interest especially for health care providers and researchers. The study aims to evaluate the HRQOL in parents of congenital heart disease (CHD) children, and to clarify the effect of the disease severity on the outcome of the HRQOL perception. Also, to analyze the internal consistency of the Arabic version of the World Health Organization (WHO) QOL-BREEF tool in order to determine whether the tool had good validity for the target population. METHODS: A cross-sectional study. The HRQOL perception was evaluated using WHOQOL-BREF questionnaire, and the internal consistency of the tool was tested using Cronbach’s alpha (α-C), RESULTS: The study sample consisted of 200 individuals, 120 parents of CHD children, compared to 80 parents of children with minor illnesses (mean age of participating parents = 35.1 ± 9.8 years). While evaluating the HRQOL, the group of parents of children with minor illnesses had higher scores than the total group of parents of CHD children in all domains, indicating a better HRQOL. Class-IV subgroup of parents of CHD children showed the most significant lower total score of domains between all classes (44.47 ± 12, p < 0.001). With respect to the internal consistency of the WHOQOL-BREF, estimation of α-C values were 0.84 points for the group of parents of CHD children, and 0.87 for the group of parents of children with minor illnesses. CONCLUSIONS: This short-term study emphasized that, HRQOL scores among parents of CHD children are compromised, and the severity of their children illness significantly affect the total score of domains in their HRQOL perception. Furthermore, the tool showed to be practical and efficient to evaluate the QOL of parents of CHD children in our population in future researches.
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spelling pubmed-69159192019-12-30 Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia Khoshhal, Saad Al-Harbi, Khaled Al-Mozainy, Ibrahim Al-Ghamdi, Saeed Aselan, Adnan Allugmani, Mohammad Salem, Sherif El-Agamy, Dina Abo-Haded, Hany Health Qual Life Outcomes Research BACKGROUND AND AIMS: Health-related quality of life (HRQOL) has garnered increasing interest especially for health care providers and researchers. The study aims to evaluate the HRQOL in parents of congenital heart disease (CHD) children, and to clarify the effect of the disease severity on the outcome of the HRQOL perception. Also, to analyze the internal consistency of the Arabic version of the World Health Organization (WHO) QOL-BREEF tool in order to determine whether the tool had good validity for the target population. METHODS: A cross-sectional study. The HRQOL perception was evaluated using WHOQOL-BREF questionnaire, and the internal consistency of the tool was tested using Cronbach’s alpha (α-C), RESULTS: The study sample consisted of 200 individuals, 120 parents of CHD children, compared to 80 parents of children with minor illnesses (mean age of participating parents = 35.1 ± 9.8 years). While evaluating the HRQOL, the group of parents of children with minor illnesses had higher scores than the total group of parents of CHD children in all domains, indicating a better HRQOL. Class-IV subgroup of parents of CHD children showed the most significant lower total score of domains between all classes (44.47 ± 12, p < 0.001). With respect to the internal consistency of the WHOQOL-BREF, estimation of α-C values were 0.84 points for the group of parents of CHD children, and 0.87 for the group of parents of children with minor illnesses. CONCLUSIONS: This short-term study emphasized that, HRQOL scores among parents of CHD children are compromised, and the severity of their children illness significantly affect the total score of domains in their HRQOL perception. Furthermore, the tool showed to be practical and efficient to evaluate the QOL of parents of CHD children in our population in future researches. BioMed Central 2019-12-16 /pmc/articles/PMC6915919/ /pubmed/31842888 http://dx.doi.org/10.1186/s12955-019-1249-z Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research
Khoshhal, Saad
Al-Harbi, Khaled
Al-Mozainy, Ibrahim
Al-Ghamdi, Saeed
Aselan, Adnan
Allugmani, Mohammad
Salem, Sherif
El-Agamy, Dina
Abo-Haded, Hany
Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia
title Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia
title_full Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia
title_fullStr Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia
title_full_unstemmed Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia
title_short Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia
title_sort assessment of quality of life among parents of children with congenital heart disease using whoqol-bref: a cross-sectional study from northwest saudi arabia
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6915919/
https://www.ncbi.nlm.nih.gov/pubmed/31842888
http://dx.doi.org/10.1186/s12955-019-1249-z
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