Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents

BACKGROUND: Most patients with cystic fibrosis (CF) suffer from pancreatic insufficiency, leading to fat malabsorption, malnutrition and abdominal discomfort. Until recently, no specific tool was available for assessing gastro-intestinal related quality of life (GI QOL) in patients with CF. As the H...

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Detalles Bibliográficos
Autores principales: Boon, Mieke, Claes, Ine, Havermans, Trudy, Fornés-Ferrer, Victoria, Calvo-Lerma, Joaquim, Asseiceira, Inês, Bulfamante, Anna, Garriga, María, Masip, Etna, Woodcock, Sandra, Walet, Sylvia, Barreto, Celeste, Colombo, Carla, Crespo, Paula, Van der Wiel, Els, Hulst, Jessie, Martinez-Barona, Sandra, Nobili, Rita, Pereira, Luisa, Ruperto, Mar, Vicente, Saioa, De Boeck, Kris, Ribes-Koninckx, Carmen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6924691/
https://www.ncbi.nlm.nih.gov/pubmed/31860639
http://dx.doi.org/10.1371/journal.pone.0225004

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