Finding ‘the inner drive’ for a rehabilitation process: a small-scale qualitative investigation among male patients with primary glioma

OBJECTIVE: Brain tumours are relatively rare but hold a significant place in cancer rehabilitation due to their pronounced disabling capacity to promote physical, cognitive and psychosocial sequelae. This small-scale qualitative study used coping and motivational theories to gain understanding and knowledge of patients’ experience of being diagnosed with a severe disease and of their view of a rehabilitation process. DESIGN: Qualitative interview study. SETTING: Odense University Hospital, Denmark. INFORMANTS: Five patients (men, aged 30–79 years) with primary glioma who had participated in a rehabilitation intervention. METHODS: Semi-structured interviews were conducted. The phenomenological interpretive analysis was used to analyse the interviews. RESULTS: The analysis revealed three main themes: (1) coping with a new life situation, (2) motivating and maintaining elements and (3) experience of the benefit of the rehabilitation programme. CONCLUSION: The study concluded that interviewed informants use problem-solving coping strategies, which make them more active in their health behaviour. However, passive and emotion-focused strategies related to confronting diagnosis may be used in some cases. The motivational aspect is multifaceted. Personal and interpersonal elements alongside a competitive setting are crucial to self-efficacy and benefit. The intervention’s impact on health-related quality of life also has the potential to increase patients’ resources to manage their situation. TRIAL REGISTRATION NUMBER: NCT02221986