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Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients

The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict...

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Autores principales: Perpiñá-Galvañ, Juana, Orts-Beneito, Núria, Fernández-Alcántara, Manuel, García-Sanjuán, Sofía, García-Caro, María Paz, Cabañero-Martínez, María José
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6926780/
https://www.ncbi.nlm.nih.gov/pubmed/31795461
http://dx.doi.org/10.3390/ijerph16234806
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author Perpiñá-Galvañ, Juana
Orts-Beneito, Núria
Fernández-Alcántara, Manuel
García-Sanjuán, Sofía
García-Caro, María Paz
Cabañero-Martínez, María José
author_facet Perpiñá-Galvañ, Juana
Orts-Beneito, Núria
Fernández-Alcántara, Manuel
García-Sanjuán, Sofía
García-Caro, María Paz
Cabañero-Martínez, María José
author_sort Perpiñá-Galvañ, Juana
collection PubMed
description The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 (SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment.
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spelling pubmed-69267802019-12-24 Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients Perpiñá-Galvañ, Juana Orts-Beneito, Núria Fernández-Alcántara, Manuel García-Sanjuán, Sofía García-Caro, María Paz Cabañero-Martínez, María José Int J Environ Res Public Health Article The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 (SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment. MDPI 2019-11-29 2019-12 /pmc/articles/PMC6926780/ /pubmed/31795461 http://dx.doi.org/10.3390/ijerph16234806 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Perpiñá-Galvañ, Juana
Orts-Beneito, Núria
Fernández-Alcántara, Manuel
García-Sanjuán, Sofía
García-Caro, María Paz
Cabañero-Martínez, María José
Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
title Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
title_full Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
title_fullStr Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
title_full_unstemmed Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
title_short Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
title_sort level of burden and health-related quality of life in caregivers of palliative care patients
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6926780/
https://www.ncbi.nlm.nih.gov/pubmed/31795461
http://dx.doi.org/10.3390/ijerph16234806
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