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Responsible data sharing in a big data-driven translational research platform: lessons learned

BACKGROUND: To foster responsible data sharing in health research, ethical governance complementary to the EU General Data Protection Regulation is necessary. A governance framework for Big Data-driven research platforms will at least need to consider the conditions as specified a priori for individ...

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Detalles Bibliográficos
Autores principales: Kalkman, S., Mostert, M., Udo-Beauvisage, N., van Delden, J. J., van Thiel, G. J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6936121/
https://www.ncbi.nlm.nih.gov/pubmed/31888593
http://dx.doi.org/10.1186/s12911-019-1001-y