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Responsible data sharing in a big data-driven translational research platform: lessons learned
BACKGROUND: To foster responsible data sharing in health research, ethical governance complementary to the EU General Data Protection Regulation is necessary. A governance framework for Big Data-driven research platforms will at least need to consider the conditions as specified a priori for individ...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6936121/ https://www.ncbi.nlm.nih.gov/pubmed/31888593 http://dx.doi.org/10.1186/s12911-019-1001-y |