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Perceived burden in dealing with different rare diseases: a qualitative focus group study

OBJECTIVES: There are more than 6000 heterogeneous rare diseases and little is known about shared experiences of affected individuals in everyday life and healthcare. Objective of this study was to explore perceived burden of patients with rare chronic diseases and identify commonalities and differe...

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Detalles Bibliográficos
Autores principales:	Uhlenbusch, Natalie, Löwe, Bernd, Depping, Miriam K
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2019
Materias:	Mental Health
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6937088/ https://www.ncbi.nlm.nih.gov/pubmed/31888936 http://dx.doi.org/10.1136/bmjopen-2019-033353

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