Cargando…
The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy
The overall care for children with cerebral palsy (CP) is challenging to the family which causes significant impacts to their livelihood. There is limited qualitative research that reports the unmet needs of parents with physically disabled children, especially highly dependent CP. The aim of this s...
Autores principales: | , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6950200/ https://www.ncbi.nlm.nih.gov/pubmed/31888294 http://dx.doi.org/10.3390/ijerph16245145 |
_version_ | 1783486016047284224 |
---|---|
author | Mohd Nordin, Nor Azlin Hui Shan, Eyu Zanudin, Asfarina |
author_facet | Mohd Nordin, Nor Azlin Hui Shan, Eyu Zanudin, Asfarina |
author_sort | Mohd Nordin, Nor Azlin |
collection | PubMed |
description | The overall care for children with cerebral palsy (CP) is challenging to the family which causes significant impacts to their livelihood. There is limited qualitative research that reports the unmet needs of parents with physically disabled children, especially highly dependent CP. The aim of this study was to explore the unmet needs of parents of highly dependent children with CP. A qualitative study using semi-structured face to face interviews was carried out among nine parents of children with CP with gross motor classification function score (GMFCS) levels III, IV, and V. The interviews were tape-recorded and transcribed verbatim. Transcribed data was analysed using thematic analysis method. Several unmet needs were highlighted by the parents; namely the needs in receiving information regarding CP conditions, getting psychological and financial support and explaining the child’s condition to strangers. In addition, parents expressed the need for better support from the social welfare department, as well as in effectively organising family functioning. The findings of this study indicate that there is a need for the healthcare professionals to develop suitable strategies to assist the parents of highly dependent children with CP in fulfilling their specific needs. The role of relevant agencies should be optimised in addressing this area of concern. |
format | Online Article Text |
id | pubmed-6950200 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-69502002020-01-16 The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy Mohd Nordin, Nor Azlin Hui Shan, Eyu Zanudin, Asfarina Int J Environ Res Public Health Article The overall care for children with cerebral palsy (CP) is challenging to the family which causes significant impacts to their livelihood. There is limited qualitative research that reports the unmet needs of parents with physically disabled children, especially highly dependent CP. The aim of this study was to explore the unmet needs of parents of highly dependent children with CP. A qualitative study using semi-structured face to face interviews was carried out among nine parents of children with CP with gross motor classification function score (GMFCS) levels III, IV, and V. The interviews were tape-recorded and transcribed verbatim. Transcribed data was analysed using thematic analysis method. Several unmet needs were highlighted by the parents; namely the needs in receiving information regarding CP conditions, getting psychological and financial support and explaining the child’s condition to strangers. In addition, parents expressed the need for better support from the social welfare department, as well as in effectively organising family functioning. The findings of this study indicate that there is a need for the healthcare professionals to develop suitable strategies to assist the parents of highly dependent children with CP in fulfilling their specific needs. The role of relevant agencies should be optimised in addressing this area of concern. MDPI 2019-12-16 2019-12 /pmc/articles/PMC6950200/ /pubmed/31888294 http://dx.doi.org/10.3390/ijerph16245145 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Mohd Nordin, Nor Azlin Hui Shan, Eyu Zanudin, Asfarina The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy |
title | The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy |
title_full | The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy |
title_fullStr | The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy |
title_full_unstemmed | The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy |
title_short | The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy |
title_sort | unmet needs of parents of highly dependent children with cerebral palsy |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6950200/ https://www.ncbi.nlm.nih.gov/pubmed/31888294 http://dx.doi.org/10.3390/ijerph16245145 |
work_keys_str_mv | AT mohdnordinnorazlin theunmetneedsofparentsofhighlydependentchildrenwithcerebralpalsy AT huishaneyu theunmetneedsofparentsofhighlydependentchildrenwithcerebralpalsy AT zanudinasfarina theunmetneedsofparentsofhighlydependentchildrenwithcerebralpalsy AT mohdnordinnorazlin unmetneedsofparentsofhighlydependentchildrenwithcerebralpalsy AT huishaneyu unmetneedsofparentsofhighlydependentchildrenwithcerebralpalsy AT zanudinasfarina unmetneedsofparentsofhighlydependentchildrenwithcerebralpalsy |