An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)

Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK) and internationally to report and monitor patients’ subjective assessments of their symptoms and functional status and also their quality of life. Whilst the importance of involving the public in PROM development to...

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Detalles Bibliográficos
Autores principales: Carlton, J., Peasgood, T., Khan, S., Barber, R., Bostock, J., Keetharuth, A. D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2020
Materias:
Commentary
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957651/
https://www.ncbi.nlm.nih.gov/pubmed/31933005
http://dx.doi.org/10.1186/s41687-019-0172-8
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author Carlton, J.
Peasgood, T.
Khan, S.
Barber, R.
Bostock, J.
Keetharuth, A. D.
author_facet Carlton, J.
Peasgood, T.
Khan, S.
Barber, R.
Bostock, J.
Keetharuth, A. D.
author_sort Carlton, J.
collection PubMed
description Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK) and internationally to report and monitor patients’ subjective assessments of their symptoms and functional status and also their quality of life. Whilst the importance of involving the public in PROM development to increase the quality of the developed PROM has been highlighted this practice is not widespread. There is a lack of guidance on how public involvement (PI) could be embedded in the development of PROMs, where the roles can be more complex than in other types of research. This paper provides a timely review and sets out an emerging framework for fully incorporating PI into PROM development.
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spelling pubmed-69576512020-01-30 An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs) Carlton, J. Peasgood, T. Khan, S. Barber, R. Bostock, J. Keetharuth, A. D. J Patient Rep Outcomes Commentary Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK) and internationally to report and monitor patients’ subjective assessments of their symptoms and functional status and also their quality of life. Whilst the importance of involving the public in PROM development to increase the quality of the developed PROM has been highlighted this practice is not widespread. There is a lack of guidance on how public involvement (PI) could be embedded in the development of PROMs, where the roles can be more complex than in other types of research. This paper provides a timely review and sets out an emerging framework for fully incorporating PI into PROM development. Springer International Publishing 2020-01-13 /pmc/articles/PMC6957651/ /pubmed/31933005 http://dx.doi.org/10.1186/s41687-019-0172-8 Text en © The Author(s) 2020 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Commentary
Carlton, J.
Peasgood, T.
Khan, S.
Barber, R.
Bostock, J.
Keetharuth, A. D.
An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
title An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
title_full An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
title_fullStr An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
title_full_unstemmed An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
title_short An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
title_sort emerging framework for fully incorporating public involvement (pi) into patient-reported outcome measures (proms)
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957651/
https://www.ncbi.nlm.nih.gov/pubmed/31933005
http://dx.doi.org/10.1186/s41687-019-0172-8
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