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Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact

Knowledge of genetic origins is widely believed to have consequences for health, family belonging and personal identity. Donor linking is the process by which donors, recipient parents (RP) and donor-conceived people (DCP) gain access to identifying information about each other. This paper reports o...

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Autores principales: Dempsey, Deborah, Kelly, Fiona, Horsfall, Briony, Hammarberg, Karin, Bourne, Kate, Johnson, Louise
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957838/
https://www.ncbi.nlm.nih.gov/pubmed/31956702
http://dx.doi.org/10.1016/j.rbms.2019.08.002
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author Dempsey, Deborah
Kelly, Fiona
Horsfall, Briony
Hammarberg, Karin
Bourne, Kate
Johnson, Louise
author_facet Dempsey, Deborah
Kelly, Fiona
Horsfall, Briony
Hammarberg, Karin
Bourne, Kate
Johnson, Louise
author_sort Dempsey, Deborah
collection PubMed
description Knowledge of genetic origins is widely believed to have consequences for health, family belonging and personal identity. Donor linking is the process by which donors, recipient parents (RP) and donor-conceived people (DCP) gain access to identifying information about each other. This paper reports on the information and contact sought by donor-linking applicants to the central and voluntary registers in the state of Victoria, Australia, which has one of the most comprehensive donor-linking legislative frameworks in the world. Applicants to the Victorian registers complete a statement of reasons (SOR), a written document that is given to the subject of the application, outlining their reasons for applying and their short- and long-term goals. SOR written by applicants between 29 June 2015 and 28 February 2017 who had agreed to be recontacted for research were analysed. Forty-two of 93 eligible applicants took part (45%). All applications pertained to donor sperm. RP were the largest applicant group (n = 19) followed by DCP (n = 17) and donors (n = 6). All applicants wanted personal information and most expressed a desire for contact. Single mothers of young children used the registers more than any other parent group, indicating that family structure may influence application patterns. While it is apparent that all applicants are eager for information and some form of interpersonal contact, further research is needed on how the legal and policy landscape of different jurisdictions influences expectations, as well as what happens after parties are linked.
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spelling pubmed-69578382020-01-17 Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact Dempsey, Deborah Kelly, Fiona Horsfall, Briony Hammarberg, Karin Bourne, Kate Johnson, Louise Reprod Biomed Soc Online Sociology and Social Policy Knowledge of genetic origins is widely believed to have consequences for health, family belonging and personal identity. Donor linking is the process by which donors, recipient parents (RP) and donor-conceived people (DCP) gain access to identifying information about each other. This paper reports on the information and contact sought by donor-linking applicants to the central and voluntary registers in the state of Victoria, Australia, which has one of the most comprehensive donor-linking legislative frameworks in the world. Applicants to the Victorian registers complete a statement of reasons (SOR), a written document that is given to the subject of the application, outlining their reasons for applying and their short- and long-term goals. SOR written by applicants between 29 June 2015 and 28 February 2017 who had agreed to be recontacted for research were analysed. Forty-two of 93 eligible applicants took part (45%). All applications pertained to donor sperm. RP were the largest applicant group (n = 19) followed by DCP (n = 17) and donors (n = 6). All applicants wanted personal information and most expressed a desire for contact. Single mothers of young children used the registers more than any other parent group, indicating that family structure may influence application patterns. While it is apparent that all applicants are eager for information and some form of interpersonal contact, further research is needed on how the legal and policy landscape of different jurisdictions influences expectations, as well as what happens after parties are linked. Elsevier 2019-09-04 /pmc/articles/PMC6957838/ /pubmed/31956702 http://dx.doi.org/10.1016/j.rbms.2019.08.002 Text en © 2019 The Authors http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Sociology and Social Policy
Dempsey, Deborah
Kelly, Fiona
Horsfall, Briony
Hammarberg, Karin
Bourne, Kate
Johnson, Louise
Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact
title Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact
title_full Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact
title_fullStr Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact
title_full_unstemmed Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact
title_short Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact
title_sort applications to statutory donor registers in victoria, australia: information sought and expectations of contact
topic Sociology and Social Policy
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957838/
https://www.ncbi.nlm.nih.gov/pubmed/31956702
http://dx.doi.org/10.1016/j.rbms.2019.08.002
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