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“Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting

Patients with dementia often face challenges in hospital settings due to cognitive impairment. The aim of this study is to explore the encounter between patients with dementia and hospital staff, from the patient perspective. Focused ethnography guided the method for data collection and the analytic...

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Autores principales: Toubøl, Annemarie, Moestrup, Lene, Ryg, Jesper, Thomsen, Katja, Nielsen, Dorthe Susanne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6958651/
https://www.ncbi.nlm.nih.gov/pubmed/31976359
http://dx.doi.org/10.1177/2333393619899388
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author Toubøl, Annemarie
Moestrup, Lene
Ryg, Jesper
Thomsen, Katja
Nielsen, Dorthe Susanne
author_facet Toubøl, Annemarie
Moestrup, Lene
Ryg, Jesper
Thomsen, Katja
Nielsen, Dorthe Susanne
author_sort Toubøl, Annemarie
collection PubMed
description Patients with dementia often face challenges in hospital settings due to cognitive impairment. The aim of this study is to explore the encounter between patients with dementia and hospital staff, from the patient perspective. Focused ethnography guided the method for data collection and the analytical approach was abductive. The findings, based on 10 observations of patients with dementia and their encounter with hospital staff in a variety of hospital settings, reveal that staff often seem to not see the person beyond the dementia diagnosis. The findings also show, however, that significant moments are constantly negotiated during encounters between patients with dementia and hospital staff, moments which occasionally allow staff to see the patients to be seen as the person they are. A rethinking of the current dementia discourse is discussed, recommending attention to the two-way interaction between patients with dementia and hospital staff, and within this an awareness of a personable approach.
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spelling pubmed-69586512020-01-23 “Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting Toubøl, Annemarie Moestrup, Lene Ryg, Jesper Thomsen, Katja Nielsen, Dorthe Susanne Glob Qual Nurs Res Single-Method Research Article Patients with dementia often face challenges in hospital settings due to cognitive impairment. The aim of this study is to explore the encounter between patients with dementia and hospital staff, from the patient perspective. Focused ethnography guided the method for data collection and the analytical approach was abductive. The findings, based on 10 observations of patients with dementia and their encounter with hospital staff in a variety of hospital settings, reveal that staff often seem to not see the person beyond the dementia diagnosis. The findings also show, however, that significant moments are constantly negotiated during encounters between patients with dementia and hospital staff, moments which occasionally allow staff to see the patients to be seen as the person they are. A rethinking of the current dementia discourse is discussed, recommending attention to the two-way interaction between patients with dementia and hospital staff, and within this an awareness of a personable approach. SAGE Publications 2020-01-13 /pmc/articles/PMC6958651/ /pubmed/31976359 http://dx.doi.org/10.1177/2333393619899388 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Single-Method Research Article
Toubøl, Annemarie
Moestrup, Lene
Ryg, Jesper
Thomsen, Katja
Nielsen, Dorthe Susanne
“Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting
title “Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting
title_full “Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting
title_fullStr “Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting
title_full_unstemmed “Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting
title_short “Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting
title_sort “even though i have dementia, i prefer that they are personable”: a qualitative focused ethnography study in a danish general hospital setting
topic Single-Method Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6958651/
https://www.ncbi.nlm.nih.gov/pubmed/31976359
http://dx.doi.org/10.1177/2333393619899388
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