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Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers

(1) Background: Swallowing difficulties (dysphagia) after stroke are not uncommon and is a consistent risk factor for stroke-associated pneumonia. This interview study explores the perspectives of stroke survivors, who had their swallowing assessed in the first few days of admission to hospital, and...

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Autores principales: Eltringham, Sabrina A., Pownall, Sue, Bray, Ben, Smith, Craig J., Piercy, Laura, Sage, Karen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6960615/
https://www.ncbi.nlm.nih.gov/pubmed/31817883
http://dx.doi.org/10.3390/geriatrics4040067
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author Eltringham, Sabrina A.
Pownall, Sue
Bray, Ben
Smith, Craig J.
Piercy, Laura
Sage, Karen
author_facet Eltringham, Sabrina A.
Pownall, Sue
Bray, Ben
Smith, Craig J.
Piercy, Laura
Sage, Karen
author_sort Eltringham, Sabrina A.
collection PubMed
description (1) Background: Swallowing difficulties (dysphagia) after stroke are not uncommon and is a consistent risk factor for stroke-associated pneumonia. This interview study explores the perspectives of stroke survivors, who had their swallowing assessed in the first few days of admission to hospital, and their informal caregivers. (2) Methods: A participatory approach was used involving people affected by stroke in the interpretation and analysis of the interview data. Data was thematically analysed and six themes were identified. (3) Results: These themes included how past-future experiences may influence a person’s emotional response to events; understanding what is happening and adjustment; the impact of dysphagia; attitudes to care; communication to patients and procedural issues. (4) Conclusion: The findings highlight the importance of effective public health messages to improve people’s responsiveness to the signs of stroke, standardisation of assessment and management procedures, effective communication to patients about the consequences of dysphagia, and the impact of dysphagia on the person who had the stroke and their informal caregiver.
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spelling pubmed-69606152020-01-23 Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers Eltringham, Sabrina A. Pownall, Sue Bray, Ben Smith, Craig J. Piercy, Laura Sage, Karen Geriatrics (Basel) Article (1) Background: Swallowing difficulties (dysphagia) after stroke are not uncommon and is a consistent risk factor for stroke-associated pneumonia. This interview study explores the perspectives of stroke survivors, who had their swallowing assessed in the first few days of admission to hospital, and their informal caregivers. (2) Methods: A participatory approach was used involving people affected by stroke in the interpretation and analysis of the interview data. Data was thematically analysed and six themes were identified. (3) Results: These themes included how past-future experiences may influence a person’s emotional response to events; understanding what is happening and adjustment; the impact of dysphagia; attitudes to care; communication to patients and procedural issues. (4) Conclusion: The findings highlight the importance of effective public health messages to improve people’s responsiveness to the signs of stroke, standardisation of assessment and management procedures, effective communication to patients about the consequences of dysphagia, and the impact of dysphagia on the person who had the stroke and their informal caregiver. MDPI 2019-12-07 /pmc/articles/PMC6960615/ /pubmed/31817883 http://dx.doi.org/10.3390/geriatrics4040067 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Eltringham, Sabrina A.
Pownall, Sue
Bray, Ben
Smith, Craig J.
Piercy, Laura
Sage, Karen
Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers
title Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers
title_full Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers
title_fullStr Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers
title_full_unstemmed Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers
title_short Experiences of Dysphagia after Stroke: An Interview Study of Stroke Survivors and Their Informal Caregivers
title_sort experiences of dysphagia after stroke: an interview study of stroke survivors and their informal caregivers
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6960615/
https://www.ncbi.nlm.nih.gov/pubmed/31817883
http://dx.doi.org/10.3390/geriatrics4040067
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