Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

BACKGROUND: As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and patients who ask for release of their genomic raw data is set to increase. This raises the question whether research participants...

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Detalles Bibliográficos
Autores principales: Schickhardt, Christoph, Fleischer, Henrike, Winkler, Eva C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6966790/
https://www.ncbi.nlm.nih.gov/pubmed/31948449
http://dx.doi.org/10.1186/s12910-020-0446-y

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