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Health information needs of families at childhood cancer: A qualitative study

INTRODUCTION: Cancer is the second cause of mortality among children. The aim of this study is to identify the health information needs of families in childhood cancer as main source of support and care for these children. MATERIALS AND METHODS: The qualitative content analysis approach was used in...

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Autores principales: Koohkan, Elham, Yousofian, Saeed, Rajabi, Gholamreza, Zare-Farashbandi, Firoozeh
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6967112/
https://www.ncbi.nlm.nih.gov/pubmed/32002418
http://dx.doi.org/10.4103/jehp.jehp_300_19
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author Koohkan, Elham
Yousofian, Saeed
Rajabi, Gholamreza
Zare-Farashbandi, Firoozeh
author_facet Koohkan, Elham
Yousofian, Saeed
Rajabi, Gholamreza
Zare-Farashbandi, Firoozeh
author_sort Koohkan, Elham
collection PubMed
description INTRODUCTION: Cancer is the second cause of mortality among children. The aim of this study is to identify the health information needs of families in childhood cancer as main source of support and care for these children. MATERIALS AND METHODS: The qualitative content analysis approach was used in this study. The study population comprised parents of childhood cancer patients visiting Omid Hospital among which 35 were selected using purposive sampling until data saturation was achieved. The study tool was semi-structured interview. RESULTS: A total of 9 main themes and 24 subthemes were identified. The main themes included: (1) information about cancer, (2) disease management and self-care, (3) communication and information interaction of medical team, (4) consultation services, (5) information sharing and exchange, (6) access to health services, (7) hospital's facilities and equipment, (8) access to social and financial support, and (9) access to health information sources. CONCLUSION: Health information needs of families in Isfahan are consistent in information needs of families identified in other studies. Meeting this information needs through plans of health-care system can help these families in better control and treatment of their children's condition.
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spelling pubmed-69671122020-01-30 Health information needs of families at childhood cancer: A qualitative study Koohkan, Elham Yousofian, Saeed Rajabi, Gholamreza Zare-Farashbandi, Firoozeh J Educ Health Promot Original Article INTRODUCTION: Cancer is the second cause of mortality among children. The aim of this study is to identify the health information needs of families in childhood cancer as main source of support and care for these children. MATERIALS AND METHODS: The qualitative content analysis approach was used in this study. The study population comprised parents of childhood cancer patients visiting Omid Hospital among which 35 were selected using purposive sampling until data saturation was achieved. The study tool was semi-structured interview. RESULTS: A total of 9 main themes and 24 subthemes were identified. The main themes included: (1) information about cancer, (2) disease management and self-care, (3) communication and information interaction of medical team, (4) consultation services, (5) information sharing and exchange, (6) access to health services, (7) hospital's facilities and equipment, (8) access to social and financial support, and (9) access to health information sources. CONCLUSION: Health information needs of families in Isfahan are consistent in information needs of families identified in other studies. Meeting this information needs through plans of health-care system can help these families in better control and treatment of their children's condition. Wolters Kluwer - Medknow 2019-12-31 /pmc/articles/PMC6967112/ /pubmed/32002418 http://dx.doi.org/10.4103/jehp.jehp_300_19 Text en Copyright: © 2019 Journal of Education and Health Promotion http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Koohkan, Elham
Yousofian, Saeed
Rajabi, Gholamreza
Zare-Farashbandi, Firoozeh
Health information needs of families at childhood cancer: A qualitative study
title Health information needs of families at childhood cancer: A qualitative study
title_full Health information needs of families at childhood cancer: A qualitative study
title_fullStr Health information needs of families at childhood cancer: A qualitative study
title_full_unstemmed Health information needs of families at childhood cancer: A qualitative study
title_short Health information needs of families at childhood cancer: A qualitative study
title_sort health information needs of families at childhood cancer: a qualitative study
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6967112/
https://www.ncbi.nlm.nih.gov/pubmed/32002418
http://dx.doi.org/10.4103/jehp.jehp_300_19
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