Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database

Rare diseases, an emerging global public health priority, require an evidence-based estimate of the global point prevalence to inform public policy. We used the publicly available epidemiological data in the Orphanet database to calculate such a prevalence estimate. Overall, Orphanet contains inform...

Descripción completa

Detalles Bibliográficos
Autores principales: Nguengang Wakap, Stéphanie, Lambert, Deborah M., Olry, Annie, Rodwell, Charlotte, Gueydan, Charlotte, Lanneau, Valérie, Murphy, Daniel, Le Cam, Yann, Rath, Ana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2019
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6974615/
https://www.ncbi.nlm.nih.gov/pubmed/31527858
http://dx.doi.org/10.1038/s41431-019-0508-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6974615/
https://www.ncbi.nlm.nih.gov/pubmed/31527858
http://dx.doi.org/10.1038/s41431-019-0508-0

Ejemplares similares