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Helping people with psychosis to expand their social networks: the stakeholders’ views

BACKGROUND: People with psychosis experience more social isolation than any other diagnostic group and have smaller social networks than the general population. This isolation can have a detrimental effect on quality of life. No direct, standardised interventions have been developed to specifically...

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Autores principales: Tee, Helena, Priebe, Stefan, Santos, Carlos, Xanthopoulou, Penny, Webber, Martin, Giacco, Domenico
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6990576/
https://www.ncbi.nlm.nih.gov/pubmed/31996175
http://dx.doi.org/10.1186/s12888-020-2445-4
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author Tee, Helena
Priebe, Stefan
Santos, Carlos
Xanthopoulou, Penny
Webber, Martin
Giacco, Domenico
author_facet Tee, Helena
Priebe, Stefan
Santos, Carlos
Xanthopoulou, Penny
Webber, Martin
Giacco, Domenico
author_sort Tee, Helena
collection PubMed
description BACKGROUND: People with psychosis experience more social isolation than any other diagnostic group and have smaller social networks than the general population. This isolation can have a detrimental effect on quality of life. No direct, standardised interventions have been developed to specifically target this issue. Stakeholders input appears crucial in the process of developing such an intervention. This study aimed to identify the main considerations when developing an intervention aiming to reduce social isolation in people with psychosis. METHODS: Focus groups and individual interviews were conducted with patients, carers and mental health staff. Data was thematically analysed. RESULTS: Thirty four patients with psychosis, 26 carers of people experiencing psychosis and 22 mental health professionals participated in the study. Suggested aspects to be considered in a novel intervention were: i) finding and training the right staff member; ii) discussing negative social attitudes and patients’ previous negative experiences, iii) addressing personal ambivalence; iv) establishing how best to provide information about social activities; v) facilitating access to social activities, vi) striking a balance between support and independence. CONCLUSION: The suggestions identified can help to develop more targeted approaches to reduce social isolation within this patient group. A patient-centred approach and generic communication skills appear to be underpinning most of the helpful elements identified, whilst specific techniques and skills can help to overcome negative past experiences and motivational barriers.
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spelling pubmed-69905762020-02-04 Helping people with psychosis to expand their social networks: the stakeholders’ views Tee, Helena Priebe, Stefan Santos, Carlos Xanthopoulou, Penny Webber, Martin Giacco, Domenico BMC Psychiatry Research Article BACKGROUND: People with psychosis experience more social isolation than any other diagnostic group and have smaller social networks than the general population. This isolation can have a detrimental effect on quality of life. No direct, standardised interventions have been developed to specifically target this issue. Stakeholders input appears crucial in the process of developing such an intervention. This study aimed to identify the main considerations when developing an intervention aiming to reduce social isolation in people with psychosis. METHODS: Focus groups and individual interviews were conducted with patients, carers and mental health staff. Data was thematically analysed. RESULTS: Thirty four patients with psychosis, 26 carers of people experiencing psychosis and 22 mental health professionals participated in the study. Suggested aspects to be considered in a novel intervention were: i) finding and training the right staff member; ii) discussing negative social attitudes and patients’ previous negative experiences, iii) addressing personal ambivalence; iv) establishing how best to provide information about social activities; v) facilitating access to social activities, vi) striking a balance between support and independence. CONCLUSION: The suggestions identified can help to develop more targeted approaches to reduce social isolation within this patient group. A patient-centred approach and generic communication skills appear to be underpinning most of the helpful elements identified, whilst specific techniques and skills can help to overcome negative past experiences and motivational barriers. BioMed Central 2020-01-29 /pmc/articles/PMC6990576/ /pubmed/31996175 http://dx.doi.org/10.1186/s12888-020-2445-4 Text en © The Author(s). 2020 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Tee, Helena
Priebe, Stefan
Santos, Carlos
Xanthopoulou, Penny
Webber, Martin
Giacco, Domenico
Helping people with psychosis to expand their social networks: the stakeholders’ views
title Helping people with psychosis to expand their social networks: the stakeholders’ views
title_full Helping people with psychosis to expand their social networks: the stakeholders’ views
title_fullStr Helping people with psychosis to expand their social networks: the stakeholders’ views
title_full_unstemmed Helping people with psychosis to expand their social networks: the stakeholders’ views
title_short Helping people with psychosis to expand their social networks: the stakeholders’ views
title_sort helping people with psychosis to expand their social networks: the stakeholders’ views
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6990576/
https://www.ncbi.nlm.nih.gov/pubmed/31996175
http://dx.doi.org/10.1186/s12888-020-2445-4
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