Disclosure to genetic relatives without consent – Australian genetic professionals’ awareness of the health privacy law

BACKGROUND: When a genetic mutation is identified in a family member (proband), internationally, it is usually the proband’s or another responsible family member’s role to disclose the information to at-risk relatives. However, both active and passive non-disclosure in families occurs: choosing not...

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Detalles Bibliográficos
Autores principales: Meggiolaro, Natalia, Barlow-Stewart, Kristine, Dunlop, Kate, Newson, Ainsley J., Fleming, Jane
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7001268/
https://www.ncbi.nlm.nih.gov/pubmed/32019532
http://dx.doi.org/10.1186/s12910-020-0451-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7001268/
https://www.ncbi.nlm.nih.gov/pubmed/32019532
http://dx.doi.org/10.1186/s12910-020-0451-1

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