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Disclosure to genetic relatives without consent – Australian genetic professionals’ awareness of the health privacy law
BACKGROUND: When a genetic mutation is identified in a family member (proband), internationally, it is usually the proband’s or another responsible family member’s role to disclose the information to at-risk relatives. However, both active and passive non-disclosure in families occurs: choosing not...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7001268/ https://www.ncbi.nlm.nih.gov/pubmed/32019532 http://dx.doi.org/10.1186/s12910-020-0451-1 |