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Services for Adults With Autism Spectrum Disorder: a Systems Perspective

PURPOSE OF REVIEW: We review original research about services for adults on the autism spectrum published from January 2013 through December 2018. The main aim is to characterize the topical and methodological aspects of research about services. We review research on services related to employment,...

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Autores principales: Shattuck, Paul T., Garfield, Tamara, Roux, Anne M., Rast, Jessica E., Anderson, Kristy, Hassrick, Elizabeth McGhee, Kuo, Alice
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7002329/
https://www.ncbi.nlm.nih.gov/pubmed/32026004
http://dx.doi.org/10.1007/s11920-020-1136-7
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author Shattuck, Paul T.
Garfield, Tamara
Roux, Anne M.
Rast, Jessica E.
Anderson, Kristy
Hassrick, Elizabeth McGhee
Kuo, Alice
author_facet Shattuck, Paul T.
Garfield, Tamara
Roux, Anne M.
Rast, Jessica E.
Anderson, Kristy
Hassrick, Elizabeth McGhee
Kuo, Alice
author_sort Shattuck, Paul T.
collection PubMed
description PURPOSE OF REVIEW: We review original research about services for adults on the autism spectrum published from January 2013 through December 2018. The main aim is to characterize the topical and methodological aspects of research about services. We review research on services related to employment, living in the community, and social participation. We compare our results with those from a similar review published in 2012 to assess progress and identify where new directions in research about services for adults with autism are needed. RECENT FINDINGS: We found the evidence base about services for adults on the autism spectrum remains very small and highly variable in aims and methods. There is wide variability in methods used to define sampling frames and recruit participants. Most studies focus on employment. Almost no studies examine the overall ecosystem of services serving autistic adults. Few studies use a conceptual framework for understanding access to, or improvement of, services. SUMMARY: The small size of the extant research coupled with inconsistent quality prevents the accumulation of new knowledge in ways that would significantly inform the improvement of systems of care for the growing population of adults on the autism spectrum.
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spelling pubmed-70023292020-02-28 Services for Adults With Autism Spectrum Disorder: a Systems Perspective Shattuck, Paul T. Garfield, Tamara Roux, Anne M. Rast, Jessica E. Anderson, Kristy Hassrick, Elizabeth McGhee Kuo, Alice Curr Psychiatry Rep Autism Spectrum Disorders (ES Brodkin, Section Editor) PURPOSE OF REVIEW: We review original research about services for adults on the autism spectrum published from January 2013 through December 2018. The main aim is to characterize the topical and methodological aspects of research about services. We review research on services related to employment, living in the community, and social participation. We compare our results with those from a similar review published in 2012 to assess progress and identify where new directions in research about services for adults with autism are needed. RECENT FINDINGS: We found the evidence base about services for adults on the autism spectrum remains very small and highly variable in aims and methods. There is wide variability in methods used to define sampling frames and recruit participants. Most studies focus on employment. Almost no studies examine the overall ecosystem of services serving autistic adults. Few studies use a conceptual framework for understanding access to, or improvement of, services. SUMMARY: The small size of the extant research coupled with inconsistent quality prevents the accumulation of new knowledge in ways that would significantly inform the improvement of systems of care for the growing population of adults on the autism spectrum. Springer US 2020-02-05 2020 /pmc/articles/PMC7002329/ /pubmed/32026004 http://dx.doi.org/10.1007/s11920-020-1136-7 Text en © The Author(s) 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.
spellingShingle Autism Spectrum Disorders (ES Brodkin, Section Editor)
Shattuck, Paul T.
Garfield, Tamara
Roux, Anne M.
Rast, Jessica E.
Anderson, Kristy
Hassrick, Elizabeth McGhee
Kuo, Alice
Services for Adults With Autism Spectrum Disorder: a Systems Perspective
title Services for Adults With Autism Spectrum Disorder: a Systems Perspective
title_full Services for Adults With Autism Spectrum Disorder: a Systems Perspective
title_fullStr Services for Adults With Autism Spectrum Disorder: a Systems Perspective
title_full_unstemmed Services for Adults With Autism Spectrum Disorder: a Systems Perspective
title_short Services for Adults With Autism Spectrum Disorder: a Systems Perspective
title_sort services for adults with autism spectrum disorder: a systems perspective
topic Autism Spectrum Disorders (ES Brodkin, Section Editor)
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7002329/
https://www.ncbi.nlm.nih.gov/pubmed/32026004
http://dx.doi.org/10.1007/s11920-020-1136-7
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