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The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory
BACKGROUND: The experience of grief in family caregivers as they provide care for persons with dementia is often overlooked. The Marwit‐Meuser Caregiver Grief Inventory (MM‐CGI) is one among the few scales that capture such experiences. In a recent study, MM‐CGI was found to contain three subscales...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7004032/ https://www.ncbi.nlm.nih.gov/pubmed/31736107 http://dx.doi.org/10.1002/gps.5238 |
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author | Chan, Ivana Yap, Philip Wee, Shiou Liang Liew, Tau Ming |
author_facet | Chan, Ivana Yap, Philip Wee, Shiou Liang Liew, Tau Ming |
author_sort | Chan, Ivana |
collection | PubMed |
description | BACKGROUND: The experience of grief in family caregivers as they provide care for persons with dementia is often overlooked. The Marwit‐Meuser Caregiver Grief Inventory (MM‐CGI) is one among the few scales that capture such experiences. In a recent study, MM‐CGI was found to contain three subscales identifying dimensions of loss in caregivers—Personal‐Sacrifice Burden (PSB), Heartfelt Sadness, Longing, and Worry (HSLW), and Felt Isolation (FI). We aimed to evaluate the validity and utility of these dimensions in a multiethnic Asian population. METHODS: Family caregivers (n = 394) completed MM‐CGI and scales assessing caregiver burden, depression, and gains. Internal consistency reliability was examined using Cronbach α; test‐retest reliability using intraclass correlation coefficient; and construct validity using Pearson correlation coefficient. The utility of the MM‐CGI dimensions was evaluated by comparing caregivers with high subscale scores across dementia stages and caregiving relationship. RESULTS: The three dimensions of MM‐CGI exhibited adequate internal consistency, test‐retest reliability, construct validity, and known‐group validity. PSB correlated most strongly with caregiver burden (r = 0.78); HSLW with caregiver depression (r = 0.75); and FI with caregiver burden and caregiver depression (r = 0.60, respectively). Caregivers with high total grief scores tended to experience most difficulty with HSLW (90.8%), followed by PSB (75.4%) and FI (46.2%). The three dimensions also increased across the dementia stages, with FI higher in mild dementia, PSB higher in moderate dementia, and HSLW higher in severe dementia. Spousal caregivers experienced most difficulty in HSLW, whereas children caregivers experienced similar levels of difficulty across the dimensions. CONCLUSIONS: The three dimensions of MM‐CGI captured distinct aspects of caregiver grief in a multiethnic Asian population and would enable more individualized assessments and interventions for caregiver grief. |
format | Online Article Text |
id | pubmed-7004032 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-70040322020-02-11 The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory Chan, Ivana Yap, Philip Wee, Shiou Liang Liew, Tau Ming Int J Geriatr Psychiatry Research Articles BACKGROUND: The experience of grief in family caregivers as they provide care for persons with dementia is often overlooked. The Marwit‐Meuser Caregiver Grief Inventory (MM‐CGI) is one among the few scales that capture such experiences. In a recent study, MM‐CGI was found to contain three subscales identifying dimensions of loss in caregivers—Personal‐Sacrifice Burden (PSB), Heartfelt Sadness, Longing, and Worry (HSLW), and Felt Isolation (FI). We aimed to evaluate the validity and utility of these dimensions in a multiethnic Asian population. METHODS: Family caregivers (n = 394) completed MM‐CGI and scales assessing caregiver burden, depression, and gains. Internal consistency reliability was examined using Cronbach α; test‐retest reliability using intraclass correlation coefficient; and construct validity using Pearson correlation coefficient. The utility of the MM‐CGI dimensions was evaluated by comparing caregivers with high subscale scores across dementia stages and caregiving relationship. RESULTS: The three dimensions of MM‐CGI exhibited adequate internal consistency, test‐retest reliability, construct validity, and known‐group validity. PSB correlated most strongly with caregiver burden (r = 0.78); HSLW with caregiver depression (r = 0.75); and FI with caregiver burden and caregiver depression (r = 0.60, respectively). Caregivers with high total grief scores tended to experience most difficulty with HSLW (90.8%), followed by PSB (75.4%) and FI (46.2%). The three dimensions also increased across the dementia stages, with FI higher in mild dementia, PSB higher in moderate dementia, and HSLW higher in severe dementia. Spousal caregivers experienced most difficulty in HSLW, whereas children caregivers experienced similar levels of difficulty across the dimensions. CONCLUSIONS: The three dimensions of MM‐CGI captured distinct aspects of caregiver grief in a multiethnic Asian population and would enable more individualized assessments and interventions for caregiver grief. John Wiley and Sons Inc. 2019-12-06 2020-02 /pmc/articles/PMC7004032/ /pubmed/31736107 http://dx.doi.org/10.1002/gps.5238 Text en © 2019 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Articles Chan, Ivana Yap, Philip Wee, Shiou Liang Liew, Tau Ming The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory |
title | The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory |
title_full | The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory |
title_fullStr | The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory |
title_full_unstemmed | The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory |
title_short | The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit‐Meuser Caregiver Grief Inventory |
title_sort | three dimensions of caregiver grief in dementia caregiving: validity and utility of the subscales of the marwit‐meuser caregiver grief inventory |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7004032/ https://www.ncbi.nlm.nih.gov/pubmed/31736107 http://dx.doi.org/10.1002/gps.5238 |
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