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What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services

Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the le...

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Autores principales: Pauly, Bernadette, Urbanoski, Karen, Hartney, Elizabeth, Shahram, Sana, Marcellus, Lenora, Wallace, Bruce, Macdonald, Marjorie, Hancock, Trevor
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Longwoods Publishing 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7020799/
https://www.ncbi.nlm.nih.gov/pubmed/32077841
http://dx.doi.org/10.12927/hcpol.2019.26075
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author Pauly, Bernadette
Urbanoski, Karen
Hartney, Elizabeth
Shahram, Sana
Marcellus, Lenora
Wallace, Bruce
Macdonald, Marjorie
Hancock, Trevor
author_facet Pauly, Bernadette
Urbanoski, Karen
Hartney, Elizabeth
Shahram, Sana
Marcellus, Lenora
Wallace, Bruce
Macdonald, Marjorie
Hancock, Trevor
author_sort Pauly, Bernadette
collection PubMed
description Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the lens of public health systems and services research. The SPOR framework is primarily focused on engaging individual patients in health research without attention to broader structural forces that shape health and participation in healthcare systems. Shifting from patient to public involvement and from patient to community engagement and being explicit about the range of health research that SPOR encompasses would enhance the framework and strengthen the potential of SPOR to improve health systems through health protection, promotion and prevention of disease and injury.
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spelling pubmed-70207992020-11-01 What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services Pauly, Bernadette Urbanoski, Karen Hartney, Elizabeth Shahram, Sana Marcellus, Lenora Wallace, Bruce Macdonald, Marjorie Hancock, Trevor Healthc Policy Discussion and Debate Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the lens of public health systems and services research. The SPOR framework is primarily focused on engaging individual patients in health research without attention to broader structural forces that shape health and participation in healthcare systems. Shifting from patient to public involvement and from patient to community engagement and being explicit about the range of health research that SPOR encompasses would enhance the framework and strengthen the potential of SPOR to improve health systems through health protection, promotion and prevention of disease and injury. Longwoods Publishing 2019-11 /pmc/articles/PMC7020799/ /pubmed/32077841 http://dx.doi.org/10.12927/hcpol.2019.26075 Text en Copyright © 2019 Longwoods Publishing http://creativecommons.org/licenses/by-nc/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial 4.0 License, which permits rights to copy and redistribute the work for non-commercial purposes only, provided the original work is given proper attribution.
spellingShingle Discussion and Debate
Pauly, Bernadette
Urbanoski, Karen
Hartney, Elizabeth
Shahram, Sana
Marcellus, Lenora
Wallace, Bruce
Macdonald, Marjorie
Hancock, Trevor
What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
title What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
title_full What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
title_fullStr What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
title_full_unstemmed What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
title_short What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
title_sort what is missing from “patient-oriented research?” a view from public health systems and services
topic Discussion and Debate
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7020799/
https://www.ncbi.nlm.nih.gov/pubmed/32077841
http://dx.doi.org/10.12927/hcpol.2019.26075
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