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What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services
Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the le...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Longwoods Publishing
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7020799/ https://www.ncbi.nlm.nih.gov/pubmed/32077841 http://dx.doi.org/10.12927/hcpol.2019.26075 |
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author | Pauly, Bernadette Urbanoski, Karen Hartney, Elizabeth Shahram, Sana Marcellus, Lenora Wallace, Bruce Macdonald, Marjorie Hancock, Trevor |
author_facet | Pauly, Bernadette Urbanoski, Karen Hartney, Elizabeth Shahram, Sana Marcellus, Lenora Wallace, Bruce Macdonald, Marjorie Hancock, Trevor |
author_sort | Pauly, Bernadette |
collection | PubMed |
description | Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the lens of public health systems and services research. The SPOR framework is primarily focused on engaging individual patients in health research without attention to broader structural forces that shape health and participation in healthcare systems. Shifting from patient to public involvement and from patient to community engagement and being explicit about the range of health research that SPOR encompasses would enhance the framework and strengthen the potential of SPOR to improve health systems through health protection, promotion and prevention of disease and injury. |
format | Online Article Text |
id | pubmed-7020799 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Longwoods Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-70207992020-11-01 What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services Pauly, Bernadette Urbanoski, Karen Hartney, Elizabeth Shahram, Sana Marcellus, Lenora Wallace, Bruce Macdonald, Marjorie Hancock, Trevor Healthc Policy Discussion and Debate Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the lens of public health systems and services research. The SPOR framework is primarily focused on engaging individual patients in health research without attention to broader structural forces that shape health and participation in healthcare systems. Shifting from patient to public involvement and from patient to community engagement and being explicit about the range of health research that SPOR encompasses would enhance the framework and strengthen the potential of SPOR to improve health systems through health protection, promotion and prevention of disease and injury. Longwoods Publishing 2019-11 /pmc/articles/PMC7020799/ /pubmed/32077841 http://dx.doi.org/10.12927/hcpol.2019.26075 Text en Copyright © 2019 Longwoods Publishing http://creativecommons.org/licenses/by-nc/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial 4.0 License, which permits rights to copy and redistribute the work for non-commercial purposes only, provided the original work is given proper attribution. |
spellingShingle | Discussion and Debate Pauly, Bernadette Urbanoski, Karen Hartney, Elizabeth Shahram, Sana Marcellus, Lenora Wallace, Bruce Macdonald, Marjorie Hancock, Trevor What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services |
title | What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services |
title_full | What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services |
title_fullStr | What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services |
title_full_unstemmed | What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services |
title_short | What Is Missing from “Patient-Oriented Research?” A View from Public Health Systems and Services |
title_sort | what is missing from “patient-oriented research?” a view from public health systems and services |
topic | Discussion and Debate |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7020799/ https://www.ncbi.nlm.nih.gov/pubmed/32077841 http://dx.doi.org/10.12927/hcpol.2019.26075 |
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