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Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis

BACKGROUND: Patient‐reported outcomes (PROs) objectively measure health‐related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient‐friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qu...

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Autores principales: Wohlfahrt, Peter, Zickmund, Susan L., Slager, Stacey, Allen, Larry A., Nicolau, Jose Nativi, Kfoury, Abdallah G., Felker, G. Michael, Conte, Jorge, Flint, Kelsey, DeVore, Adam D., Selzman, Craig H., Hess, Rachel, Spertus, John A., Stehlik, Josef
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7033831/
https://www.ncbi.nlm.nih.gov/pubmed/31937195
http://dx.doi.org/10.1161/JAHA.119.013047
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author Wohlfahrt, Peter
Zickmund, Susan L.
Slager, Stacey
Allen, Larry A.
Nicolau, Jose Nativi
Kfoury, Abdallah G.
Felker, G. Michael
Conte, Jorge
Flint, Kelsey
DeVore, Adam D.
Selzman, Craig H.
Hess, Rachel
Spertus, John A.
Stehlik, Josef
author_facet Wohlfahrt, Peter
Zickmund, Susan L.
Slager, Stacey
Allen, Larry A.
Nicolau, Jose Nativi
Kfoury, Abdallah G.
Felker, G. Michael
Conte, Jorge
Flint, Kelsey
DeVore, Adam D.
Selzman, Craig H.
Hess, Rachel
Spertus, John A.
Stehlik, Josef
author_sort Wohlfahrt, Peter
collection PubMed
description BACKGROUND: Patient‐reported outcomes (PROs) objectively measure health‐related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient‐friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qualitative study of diverse providers to describe the barriers and facilitators of routine PRO use in heart failure clinics. METHODS AND RESULTS: Sixty heart failure providers from 5 institutions participated in 8 focus groups to explore provider perspectives on the use of heart failure‐specific and generic PROs in clinical practice. A qualitative editing approach was used to analyze the data, whereby a coding dictionary was iteratively developed and applied using the qualitative software program Altas.ti. Three main themes, supporting and impeding PRO use, emerged: (1) data collection; (2) presentation and interpretation; and (3) utility and value. For each construct, we identified perspectives that highlighted both barriers and facilitators. Providers identified burden, survey fatigue, and language/health literacy barriers as potentially impeding data collection. Optimal workflow, PRO frequency and length, use of PRO translations, and assistance of a patient's proxy were suggested as facilitators. Focus group discussions provided insight on how to display PROs to support its interpretability and sharing. Furthermore, the need to educate providers on the utility and value PROs over and above current clinical approaches emerged. CONCLUSIONS: Overcoming the barriers and supporting facilitators of PRO adoption could potentially lead to more successful adoption of PROs in heart failure clinics.
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spelling pubmed-70338312020-02-27 Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis Wohlfahrt, Peter Zickmund, Susan L. Slager, Stacey Allen, Larry A. Nicolau, Jose Nativi Kfoury, Abdallah G. Felker, G. Michael Conte, Jorge Flint, Kelsey DeVore, Adam D. Selzman, Craig H. Hess, Rachel Spertus, John A. Stehlik, Josef J Am Heart Assoc Original Research BACKGROUND: Patient‐reported outcomes (PROs) objectively measure health‐related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient‐friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qualitative study of diverse providers to describe the barriers and facilitators of routine PRO use in heart failure clinics. METHODS AND RESULTS: Sixty heart failure providers from 5 institutions participated in 8 focus groups to explore provider perspectives on the use of heart failure‐specific and generic PROs in clinical practice. A qualitative editing approach was used to analyze the data, whereby a coding dictionary was iteratively developed and applied using the qualitative software program Altas.ti. Three main themes, supporting and impeding PRO use, emerged: (1) data collection; (2) presentation and interpretation; and (3) utility and value. For each construct, we identified perspectives that highlighted both barriers and facilitators. Providers identified burden, survey fatigue, and language/health literacy barriers as potentially impeding data collection. Optimal workflow, PRO frequency and length, use of PRO translations, and assistance of a patient's proxy were suggested as facilitators. Focus group discussions provided insight on how to display PROs to support its interpretability and sharing. Furthermore, the need to educate providers on the utility and value PROs over and above current clinical approaches emerged. CONCLUSIONS: Overcoming the barriers and supporting facilitators of PRO adoption could potentially lead to more successful adoption of PROs in heart failure clinics. John Wiley and Sons Inc. 2020-01-15 /pmc/articles/PMC7033831/ /pubmed/31937195 http://dx.doi.org/10.1161/JAHA.119.013047 Text en © 2020 The Authors. Published on behalf of the American Heart Association, Inc., by Wiley. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Research
Wohlfahrt, Peter
Zickmund, Susan L.
Slager, Stacey
Allen, Larry A.
Nicolau, Jose Nativi
Kfoury, Abdallah G.
Felker, G. Michael
Conte, Jorge
Flint, Kelsey
DeVore, Adam D.
Selzman, Craig H.
Hess, Rachel
Spertus, John A.
Stehlik, Josef
Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis
title Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis
title_full Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis
title_fullStr Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis
title_full_unstemmed Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis
title_short Provider Perspectives on the Feasibility and Utility of Routine Patient‐Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis
title_sort provider perspectives on the feasibility and utility of routine patient‐reported outcomes assessment in heart failure: a qualitative analysis
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7033831/
https://www.ncbi.nlm.nih.gov/pubmed/31937195
http://dx.doi.org/10.1161/JAHA.119.013047
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