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Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey

Background: Dementia has become a growing health-care problem in the rapidly ageing Japanese population. This study assesses the impact of dementia on quality of life, economic burden, and productivity loss. Objective: The objective of this study was to assess the impact of dementia on the Quality o...

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Autores principales: Igarashi, Ataru, Fukuda, Ayako, Teng, Lida, Ma, Fan-Fan, Dorey, Julie, Onishi, Yoshie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Routledge 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7034462/
https://www.ncbi.nlm.nih.gov/pubmed/32128076
http://dx.doi.org/10.1080/20016689.2020.1720068
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author Igarashi, Ataru
Fukuda, Ayako
Teng, Lida
Ma, Fan-Fan
Dorey, Julie
Onishi, Yoshie
author_facet Igarashi, Ataru
Fukuda, Ayako
Teng, Lida
Ma, Fan-Fan
Dorey, Julie
Onishi, Yoshie
author_sort Igarashi, Ataru
collection PubMed
description Background: Dementia has become a growing health-care problem in the rapidly ageing Japanese population. This study assesses the impact of dementia on quality of life, economic burden, and productivity loss. Objective: The objective of this study was to assess the impact of dementia on the Quality of Life (QoL), economic burden, and productivity loss among families living with dementia. Methods: An online survey was conducted among families who lived with relatives with dementia. Demographic data and information about health condition and costs of long-term care and treatment were collected. Participants were asked to answer the EuroQol (EQ-5D-5L) questionnaire, Zarit Burden Interview (ZARIT-8), and Work Productivity and Activity Impairment Questionnaire (WPAI). Multivariate analyses were conducted to assess factors associated with burden by families living with dementia. Results: Six hundred and thirty-five participants completed the survey. Of these participants, 50.5% were primary caregivers. Overall, 78.7% of dementia patients suffered from Alzheimer, and 43.9% needed long-term care. Compared to non-primary caregivers, primary caregivers had lower health utility scores (0.896 vs 0.873; p = 0.02), higher burden of caregiving (ZARIT-8: 21.1 vs 24.5; p < 0.0001), and higher overall work impairment (40.2% vs 20.8%; p < 0.0001), absenteeism (15.3% vs 5.7%; p < 0.0001), and presenteeism-related impairment (33.2% vs 17.3%; p < 0.0001). Conclusion: Families living with dementia caring for a person with dementia experience increased burden. Health policies related to dementia need to be considered not only for patients, but also for their families living with dementia to improve their QoL.
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spelling pubmed-70344622020-03-03 Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey Igarashi, Ataru Fukuda, Ayako Teng, Lida Ma, Fan-Fan Dorey, Julie Onishi, Yoshie J Mark Access Health Policy Research Article Background: Dementia has become a growing health-care problem in the rapidly ageing Japanese population. This study assesses the impact of dementia on quality of life, economic burden, and productivity loss. Objective: The objective of this study was to assess the impact of dementia on the Quality of Life (QoL), economic burden, and productivity loss among families living with dementia. Methods: An online survey was conducted among families who lived with relatives with dementia. Demographic data and information about health condition and costs of long-term care and treatment were collected. Participants were asked to answer the EuroQol (EQ-5D-5L) questionnaire, Zarit Burden Interview (ZARIT-8), and Work Productivity and Activity Impairment Questionnaire (WPAI). Multivariate analyses were conducted to assess factors associated with burden by families living with dementia. Results: Six hundred and thirty-five participants completed the survey. Of these participants, 50.5% were primary caregivers. Overall, 78.7% of dementia patients suffered from Alzheimer, and 43.9% needed long-term care. Compared to non-primary caregivers, primary caregivers had lower health utility scores (0.896 vs 0.873; p = 0.02), higher burden of caregiving (ZARIT-8: 21.1 vs 24.5; p < 0.0001), and higher overall work impairment (40.2% vs 20.8%; p < 0.0001), absenteeism (15.3% vs 5.7%; p < 0.0001), and presenteeism-related impairment (33.2% vs 17.3%; p < 0.0001). Conclusion: Families living with dementia caring for a person with dementia experience increased burden. Health policies related to dementia need to be considered not only for patients, but also for their families living with dementia to improve their QoL. Routledge 2020-02-11 /pmc/articles/PMC7034462/ /pubmed/32128076 http://dx.doi.org/10.1080/20016689.2020.1720068 Text en © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Igarashi, Ataru
Fukuda, Ayako
Teng, Lida
Ma, Fan-Fan
Dorey, Julie
Onishi, Yoshie
Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
title Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
title_full Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
title_fullStr Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
title_full_unstemmed Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
title_short Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
title_sort family caregiving in dementia and its impact on quality of life and economic burden in japan-web based survey
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7034462/
https://www.ncbi.nlm.nih.gov/pubmed/32128076
http://dx.doi.org/10.1080/20016689.2020.1720068
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