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Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease

Fox Insight is an online, longitudinal health study of people with and without Parkinson’s disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson’s disease research. The dataset is...

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Autores principales: Smolensky, Luba, Amondikar, Ninad, Crawford, Karen, Neu, Scott, Kopil, Catherine M., Daeschler, Margaret, Riley, Lindsey, Brown, Ethan, Toga, Arthur W., Tanner, Caroline
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7039948/
https://www.ncbi.nlm.nih.gov/pubmed/32094335
http://dx.doi.org/10.1038/s41597-020-0401-2
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author Smolensky, Luba
Amondikar, Ninad
Crawford, Karen
Neu, Scott
Kopil, Catherine M.
Daeschler, Margaret
Riley, Lindsey
Brown, Ethan
Toga, Arthur W.
Tanner, Caroline
author_facet Smolensky, Luba
Amondikar, Ninad
Crawford, Karen
Neu, Scott
Kopil, Catherine M.
Daeschler, Margaret
Riley, Lindsey
Brown, Ethan
Toga, Arthur W.
Tanner, Caroline
author_sort Smolensky, Luba
collection PubMed
description Fox Insight is an online, longitudinal health study of people with and without Parkinson’s disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson’s disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinson’s disease- related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor.
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spelling pubmed-70399482020-03-04 Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease Smolensky, Luba Amondikar, Ninad Crawford, Karen Neu, Scott Kopil, Catherine M. Daeschler, Margaret Riley, Lindsey Brown, Ethan Toga, Arthur W. Tanner, Caroline Sci Data Data Descriptor Fox Insight is an online, longitudinal health study of people with and without Parkinson’s disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson’s disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinson’s disease- related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor. Nature Publishing Group UK 2020-02-24 /pmc/articles/PMC7039948/ /pubmed/32094335 http://dx.doi.org/10.1038/s41597-020-0401-2 Text en © The Author(s) 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver http://creativecommons.org/publicdomain/zero/1.0/ applies to the metadata files associated with this article.
spellingShingle Data Descriptor
Smolensky, Luba
Amondikar, Ninad
Crawford, Karen
Neu, Scott
Kopil, Catherine M.
Daeschler, Margaret
Riley, Lindsey
Brown, Ethan
Toga, Arthur W.
Tanner, Caroline
Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
title Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
title_full Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
title_fullStr Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
title_full_unstemmed Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
title_short Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease
title_sort fox insight collects online, longitudinal patient-reported outcomes and genetic data on parkinson’s disease
topic Data Descriptor
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7039948/
https://www.ncbi.nlm.nih.gov/pubmed/32094335
http://dx.doi.org/10.1038/s41597-020-0401-2
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