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Is it ever morally permissible to select for deafness in one’s child?

As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF)....

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Autor principal: Wallis, Jacqueline Mae
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Netherlands 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7040060/
https://www.ncbi.nlm.nih.gov/pubmed/31542873
http://dx.doi.org/10.1007/s11019-019-09922-6
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author Wallis, Jacqueline Mae
author_facet Wallis, Jacqueline Mae
author_sort Wallis, Jacqueline Mae
collection PubMed
description As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF). One of the traits PGD can identify is genetic deafness, and hearing embryos are now preferentially selected around the globe using this method. Importantly, some Deaf families desire a deaf child, and PGD–IVF is also an option for them. Selection for genetic deafness, however, encounters widespread disapproval in the hearing community, including mainstream philosophy and bioethics. In this paper I apply Elizabeth Barnes’ value-neutral model of disability as mere-difference to the case of selecting for deafness. I draw on evidence from Deaf Studies and Disability Studies to build an understanding of deafness, the Deaf community, and the circumstances relevant to reproductive choices that may obtain for some Deaf families. Selection for deafness, with deafness understood as mere-difference and valued for its cultural identity, need not necessitate impermissible moral harms. I thus advocate that it is sometimes morally permissible to select for deafness in one’s child.
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spelling pubmed-70400602020-03-10 Is it ever morally permissible to select for deafness in one’s child? Wallis, Jacqueline Mae Med Health Care Philos Scientific Contribution As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF). One of the traits PGD can identify is genetic deafness, and hearing embryos are now preferentially selected around the globe using this method. Importantly, some Deaf families desire a deaf child, and PGD–IVF is also an option for them. Selection for genetic deafness, however, encounters widespread disapproval in the hearing community, including mainstream philosophy and bioethics. In this paper I apply Elizabeth Barnes’ value-neutral model of disability as mere-difference to the case of selecting for deafness. I draw on evidence from Deaf Studies and Disability Studies to build an understanding of deafness, the Deaf community, and the circumstances relevant to reproductive choices that may obtain for some Deaf families. Selection for deafness, with deafness understood as mere-difference and valued for its cultural identity, need not necessitate impermissible moral harms. I thus advocate that it is sometimes morally permissible to select for deafness in one’s child. Springer Netherlands 2019-09-21 2020 /pmc/articles/PMC7040060/ /pubmed/31542873 http://dx.doi.org/10.1007/s11019-019-09922-6 Text en © The Author(s) 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Scientific Contribution
Wallis, Jacqueline Mae
Is it ever morally permissible to select for deafness in one’s child?
title Is it ever morally permissible to select for deafness in one’s child?
title_full Is it ever morally permissible to select for deafness in one’s child?
title_fullStr Is it ever morally permissible to select for deafness in one’s child?
title_full_unstemmed Is it ever morally permissible to select for deafness in one’s child?
title_short Is it ever morally permissible to select for deafness in one’s child?
title_sort is it ever morally permissible to select for deafness in one’s child?
topic Scientific Contribution
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7040060/
https://www.ncbi.nlm.nih.gov/pubmed/31542873
http://dx.doi.org/10.1007/s11019-019-09922-6
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