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Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research

OBJECTIVES: The overall goal of this study is to identify priorities for cardiovascular (CV) health research that are important to patients and clinician-researchers. We brought together a group of CV patients and clinician-researchers new to patient-oriented research (POR), to build a multidiscipli...

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Autores principales: Santana, Maria-Jose, Zelinsky, Sandra, Ahmed, Sadia, Doktorchik, Chelsea, James, Matthew, Wilton, Stephen, Quan, Hude, Fernandez, Nicolas, Anderson, Todd, Butalia, Sonia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7044837/
https://www.ncbi.nlm.nih.gov/pubmed/32034018
http://dx.doi.org/10.1136/bmjopen-2019-031187
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author Santana, Maria-Jose
Zelinsky, Sandra
Ahmed, Sadia
Doktorchik, Chelsea
James, Matthew
Wilton, Stephen
Quan, Hude
Fernandez, Nicolas
Anderson, Todd
Butalia, Sonia
author_facet Santana, Maria-Jose
Zelinsky, Sandra
Ahmed, Sadia
Doktorchik, Chelsea
James, Matthew
Wilton, Stephen
Quan, Hude
Fernandez, Nicolas
Anderson, Todd
Butalia, Sonia
author_sort Santana, Maria-Jose
collection PubMed
description OBJECTIVES: The overall goal of this study is to identify priorities for cardiovascular (CV) health research that are important to patients and clinician-researchers. We brought together a group of CV patients and clinician-researchers new to patient-oriented research (POR), to build a multidisciplinary POR team and form an advisory committee for the Libin Cardiovascular Institute of Alberta. DESIGN: This qualitative POR used a participatory health research paradigm to work with participants in eliciting their priorities. Therefore, participants were involved in priority setting, and analysis of findings. Participants also developed a plan for continued engagement to support POR in CV health research. SETTING: Libin Cardiovascular Institute of Alberta, Cumming School of Medicine, University of Calgary, Canada. PARTICIPANTS: A total of 23 participants, including patients and family caregivers (n=12) and clinician-researchers (n=11). RESULTS: Participants identified barriers and facilitators to POR in CV health (lack of awareness of POR and poor understanding on the role of patients) and 10 research priorities for improving CV health. The CV health research priorities include: (1) CV disease prediction and prevention, (2) access to CV care, (3) communication with providers, (4) use of eHealth technology, (5) patient experiences in healthcare, (6) patient engagement, (7) transitions and continuity of CV care, (8) integrated CV care, (9) development of structures for patient-to-patient support and (10) research on rare heart diseases. CONCLUSIONS: In this study, research priorities were identified by patients and clinician-researchers working together to improve CV health. Future research programme and projects will be developed to address these priorities. A key output of this study is the creation of the patient advisory council that will provide support and will work with clinician-researchers to improve CV health.
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spelling pubmed-70448372020-03-09 Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research Santana, Maria-Jose Zelinsky, Sandra Ahmed, Sadia Doktorchik, Chelsea James, Matthew Wilton, Stephen Quan, Hude Fernandez, Nicolas Anderson, Todd Butalia, Sonia BMJ Open Health Services Research OBJECTIVES: The overall goal of this study is to identify priorities for cardiovascular (CV) health research that are important to patients and clinician-researchers. We brought together a group of CV patients and clinician-researchers new to patient-oriented research (POR), to build a multidisciplinary POR team and form an advisory committee for the Libin Cardiovascular Institute of Alberta. DESIGN: This qualitative POR used a participatory health research paradigm to work with participants in eliciting their priorities. Therefore, participants were involved in priority setting, and analysis of findings. Participants also developed a plan for continued engagement to support POR in CV health research. SETTING: Libin Cardiovascular Institute of Alberta, Cumming School of Medicine, University of Calgary, Canada. PARTICIPANTS: A total of 23 participants, including patients and family caregivers (n=12) and clinician-researchers (n=11). RESULTS: Participants identified barriers and facilitators to POR in CV health (lack of awareness of POR and poor understanding on the role of patients) and 10 research priorities for improving CV health. The CV health research priorities include: (1) CV disease prediction and prevention, (2) access to CV care, (3) communication with providers, (4) use of eHealth technology, (5) patient experiences in healthcare, (6) patient engagement, (7) transitions and continuity of CV care, (8) integrated CV care, (9) development of structures for patient-to-patient support and (10) research on rare heart diseases. CONCLUSIONS: In this study, research priorities were identified by patients and clinician-researchers working together to improve CV health. Future research programme and projects will be developed to address these priorities. A key output of this study is the creation of the patient advisory council that will provide support and will work with clinician-researchers to improve CV health. BMJ Publishing Group 2020-02-06 /pmc/articles/PMC7044837/ /pubmed/32034018 http://dx.doi.org/10.1136/bmjopen-2019-031187 Text en © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Health Services Research
Santana, Maria-Jose
Zelinsky, Sandra
Ahmed, Sadia
Doktorchik, Chelsea
James, Matthew
Wilton, Stephen
Quan, Hude
Fernandez, Nicolas
Anderson, Todd
Butalia, Sonia
Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
title Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
title_full Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
title_fullStr Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
title_full_unstemmed Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
title_short Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
title_sort patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
topic Health Services Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7044837/
https://www.ncbi.nlm.nih.gov/pubmed/32034018
http://dx.doi.org/10.1136/bmjopen-2019-031187
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