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A civil society view of rare disease public policy in six Latin American countries
Patients with rare diseases across the world struggle to access timely diagnosis and state-of-the-art treatment and management of their conditions. Several recently published reviews highlight the importance of country efforts to address rare diseases and orphan drugs policy comprehensively. However...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2020
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7047392/ https://www.ncbi.nlm.nih.gov/pubmed/32106873 http://dx.doi.org/10.1186/s13023-020-1314-z |