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Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving

Linked survey and Twitter data present an unprecedented opportunity for social scientific analysis, but the ethical implications for such work are complex—requiring a deeper understanding of the nature and composition of Twitter data to fully appreciate the risks of disclosure and harm to participan...

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Detalles Bibliográficos
Autores principales: Sloan, Luke, Jessop, Curtis, Al Baghal, Tarek, Williams, Matthew
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049949/
https://www.ncbi.nlm.nih.gov/pubmed/31220995
http://dx.doi.org/10.1177/1556264619853447
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author Sloan, Luke
Jessop, Curtis
Al Baghal, Tarek
Williams, Matthew
author_facet Sloan, Luke
Jessop, Curtis
Al Baghal, Tarek
Williams, Matthew
author_sort Sloan, Luke
collection PubMed
description Linked survey and Twitter data present an unprecedented opportunity for social scientific analysis, but the ethical implications for such work are complex—requiring a deeper understanding of the nature and composition of Twitter data to fully appreciate the risks of disclosure and harm to participants. In this article, we draw on our experience of three recent linked data studies, briefly discussing the background research on data linkage and the complications around ensuring informed consent. Particular attention is paid to the vast array of data available from Twitter and in what manner it might be disclosive. In light of this, the issues of maintaining security, minimizing risk, archiving, and reuse are applied to linked Twitter and survey data. In conclusion, we reflect on how our ability to collect and work with Twitter data has outpaced our technical understandings of how the data are constituted and observe that understanding one’s data is an essential prerequisite for ensuring best ethical practice.
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spelling pubmed-70499492020-03-17 Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving Sloan, Luke Jessop, Curtis Al Baghal, Tarek Williams, Matthew J Empir Res Hum Res Ethics Everyday Experience and Ethics of Social Media Research Practice Linked survey and Twitter data present an unprecedented opportunity for social scientific analysis, but the ethical implications for such work are complex—requiring a deeper understanding of the nature and composition of Twitter data to fully appreciate the risks of disclosure and harm to participants. In this article, we draw on our experience of three recent linked data studies, briefly discussing the background research on data linkage and the complications around ensuring informed consent. Particular attention is paid to the vast array of data available from Twitter and in what manner it might be disclosive. In light of this, the issues of maintaining security, minimizing risk, archiving, and reuse are applied to linked Twitter and survey data. In conclusion, we reflect on how our ability to collect and work with Twitter data has outpaced our technical understandings of how the data are constituted and observe that understanding one’s data is an essential prerequisite for ensuring best ethical practice. SAGE Publications 2019-06-21 2020-02 /pmc/articles/PMC7049949/ /pubmed/31220995 http://dx.doi.org/10.1177/1556264619853447 Text en © The Author(s) 2019 http://creativecommons.org/licenses/by/4.0/ This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Everyday Experience and Ethics of Social Media Research Practice
Sloan, Luke
Jessop, Curtis
Al Baghal, Tarek
Williams, Matthew
Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
title Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
title_full Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
title_fullStr Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
title_full_unstemmed Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
title_short Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
title_sort linking survey and twitter data: informed consent, disclosure, security, and archiving
topic Everyday Experience and Ethics of Social Media Research Practice
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049949/
https://www.ncbi.nlm.nih.gov/pubmed/31220995
http://dx.doi.org/10.1177/1556264619853447
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