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Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
Linked survey and Twitter data present an unprecedented opportunity for social scientific analysis, but the ethical implications for such work are complex—requiring a deeper understanding of the nature and composition of Twitter data to fully appreciate the risks of disclosure and harm to participan...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049949/ https://www.ncbi.nlm.nih.gov/pubmed/31220995 http://dx.doi.org/10.1177/1556264619853447 |
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author | Sloan, Luke Jessop, Curtis Al Baghal, Tarek Williams, Matthew |
author_facet | Sloan, Luke Jessop, Curtis Al Baghal, Tarek Williams, Matthew |
author_sort | Sloan, Luke |
collection | PubMed |
description | Linked survey and Twitter data present an unprecedented opportunity for social scientific analysis, but the ethical implications for such work are complex—requiring a deeper understanding of the nature and composition of Twitter data to fully appreciate the risks of disclosure and harm to participants. In this article, we draw on our experience of three recent linked data studies, briefly discussing the background research on data linkage and the complications around ensuring informed consent. Particular attention is paid to the vast array of data available from Twitter and in what manner it might be disclosive. In light of this, the issues of maintaining security, minimizing risk, archiving, and reuse are applied to linked Twitter and survey data. In conclusion, we reflect on how our ability to collect and work with Twitter data has outpaced our technical understandings of how the data are constituted and observe that understanding one’s data is an essential prerequisite for ensuring best ethical practice. |
format | Online Article Text |
id | pubmed-7049949 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-70499492020-03-17 Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving Sloan, Luke Jessop, Curtis Al Baghal, Tarek Williams, Matthew J Empir Res Hum Res Ethics Everyday Experience and Ethics of Social Media Research Practice Linked survey and Twitter data present an unprecedented opportunity for social scientific analysis, but the ethical implications for such work are complex—requiring a deeper understanding of the nature and composition of Twitter data to fully appreciate the risks of disclosure and harm to participants. In this article, we draw on our experience of three recent linked data studies, briefly discussing the background research on data linkage and the complications around ensuring informed consent. Particular attention is paid to the vast array of data available from Twitter and in what manner it might be disclosive. In light of this, the issues of maintaining security, minimizing risk, archiving, and reuse are applied to linked Twitter and survey data. In conclusion, we reflect on how our ability to collect and work with Twitter data has outpaced our technical understandings of how the data are constituted and observe that understanding one’s data is an essential prerequisite for ensuring best ethical practice. SAGE Publications 2019-06-21 2020-02 /pmc/articles/PMC7049949/ /pubmed/31220995 http://dx.doi.org/10.1177/1556264619853447 Text en © The Author(s) 2019 http://creativecommons.org/licenses/by/4.0/ This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Everyday Experience and Ethics of Social Media Research Practice Sloan, Luke Jessop, Curtis Al Baghal, Tarek Williams, Matthew Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving |
title | Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving |
title_full | Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving |
title_fullStr | Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving |
title_full_unstemmed | Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving |
title_short | Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving |
title_sort | linking survey and twitter data: informed consent, disclosure, security, and archiving |
topic | Everyday Experience and Ethics of Social Media Research Practice |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049949/ https://www.ncbi.nlm.nih.gov/pubmed/31220995 http://dx.doi.org/10.1177/1556264619853447 |
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