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Optimizing genetics online resources for diverse readers
PURPOSE: Clear and accurate genetic information should be available to health-care consumers at an individualized level of comprehension. The objective of this study is to evaluate the complexity of common online resources and to simplify text content using automated text processing tools. METHODS:...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group US
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7056640/ https://www.ncbi.nlm.nih.gov/pubmed/31767985 http://dx.doi.org/10.1038/s41436-019-0695-7 |
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author | Chang, Jiyoo Penon-Portmann, Monica Shieh, Joseph T. |
author_facet | Chang, Jiyoo Penon-Portmann, Monica Shieh, Joseph T. |
author_sort | Chang, Jiyoo |
collection | PubMed |
description | PURPOSE: Clear and accurate genetic information should be available to health-care consumers at an individualized level of comprehension. The objective of this study is to evaluate the complexity of common online resources and to simplify text content using automated text processing tools. METHODS: We extracted all text from Genetics Home Reference and MedlinePlus in bulk and analyzed content using natural language processing. We applied custom tools to improve the readability and compared readability before and after text optimization. RESULTS: Commonly used educational materials were more complex than the recommended reading level for the general public. Genetic health information entries from Genetics Home Reference (n = 1279) were written at a median 13.0 grade level. MedlinePlus entries, which are not exclusively genetic (n = 1030), had a median grade level of 7.7. When we optimized text for the 59 actionable conditions by prioritizing medical details using a standard structure, the average reading grade level improved. CONCLUSION: Factors that increase complexity are long sentences and difficult words. Future strategies to reduce complexity include prioritizing relevant details and using more illustrations. Simplifying and providing standardized online health resources would benefit diverse consumers and promote inclusivity. |
format | Online Article Text |
id | pubmed-7056640 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Nature Publishing Group US |
record_format | MEDLINE/PubMed |
spelling | pubmed-70566402020-03-06 Optimizing genetics online resources for diverse readers Chang, Jiyoo Penon-Portmann, Monica Shieh, Joseph T. Genet Med Education Report PURPOSE: Clear and accurate genetic information should be available to health-care consumers at an individualized level of comprehension. The objective of this study is to evaluate the complexity of common online resources and to simplify text content using automated text processing tools. METHODS: We extracted all text from Genetics Home Reference and MedlinePlus in bulk and analyzed content using natural language processing. We applied custom tools to improve the readability and compared readability before and after text optimization. RESULTS: Commonly used educational materials were more complex than the recommended reading level for the general public. Genetic health information entries from Genetics Home Reference (n = 1279) were written at a median 13.0 grade level. MedlinePlus entries, which are not exclusively genetic (n = 1030), had a median grade level of 7.7. When we optimized text for the 59 actionable conditions by prioritizing medical details using a standard structure, the average reading grade level improved. CONCLUSION: Factors that increase complexity are long sentences and difficult words. Future strategies to reduce complexity include prioritizing relevant details and using more illustrations. Simplifying and providing standardized online health resources would benefit diverse consumers and promote inclusivity. Nature Publishing Group US 2019-11-26 2020 /pmc/articles/PMC7056640/ /pubmed/31767985 http://dx.doi.org/10.1038/s41436-019-0695-7 Text en © The Author(s) 2019 Open Access This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, and provide a link to the Creative Commons license. You do not have permission under this license to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-nd/4.0/. |
spellingShingle | Education Report Chang, Jiyoo Penon-Portmann, Monica Shieh, Joseph T. Optimizing genetics online resources for diverse readers |
title | Optimizing genetics online resources for diverse readers |
title_full | Optimizing genetics online resources for diverse readers |
title_fullStr | Optimizing genetics online resources for diverse readers |
title_full_unstemmed | Optimizing genetics online resources for diverse readers |
title_short | Optimizing genetics online resources for diverse readers |
title_sort | optimizing genetics online resources for diverse readers |
topic | Education Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7056640/ https://www.ncbi.nlm.nih.gov/pubmed/31767985 http://dx.doi.org/10.1038/s41436-019-0695-7 |
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