Cargando…

Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?

Genomic data sharing is becoming more important as scientists join forces across borders in biomedical research for the benefit of patients and society. The EU's General Data Protection Regulation (GDPR) helps simplify sharing of such data at the European and international level. However, initi...

Descripción completa

Detalles Bibliográficos
Autores principales: Molnár‐Gábor, Fruzsina, Korbel, Jan O
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7059003/
https://www.ncbi.nlm.nih.gov/pubmed/32072760
http://dx.doi.org/10.15252/emmm.201911421
_version_ 1783503959565008896
author Molnár‐Gábor, Fruzsina
Korbel, Jan O
author_facet Molnár‐Gábor, Fruzsina
Korbel, Jan O
author_sort Molnár‐Gábor, Fruzsina
collection PubMed
description Genomic data sharing is becoming more important as scientists join forces across borders in biomedical research for the benefit of patients and society. The EU's General Data Protection Regulation (GDPR) helps simplify sharing of such data at the European and international level. However, initial optimism has dried up as EU member states go their own ways in implementing the GDPR into national laws, and as legal cases challenging data sharing reach courts. Codes of conduct could facilitate data sharing in Europe and better connect it to global health research. This commentary explains the potential of codes of conduct for addressees and drafters. Codes are no panacea though; other measures may be necessary to ensure that Europe remains collaborative and competitive in biomedical research. Nevertheless, codes of conduct would bring immediate benefits and, in the long term, could foster a true European ecosystem for joint biomedical research and easier international data sharing.
format Online
Article
Text
id pubmed-7059003
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-70590032020-03-11 Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall? Molnár‐Gábor, Fruzsina Korbel, Jan O EMBO Mol Med Opinion Genomic data sharing is becoming more important as scientists join forces across borders in biomedical research for the benefit of patients and society. The EU's General Data Protection Regulation (GDPR) helps simplify sharing of such data at the European and international level. However, initial optimism has dried up as EU member states go their own ways in implementing the GDPR into national laws, and as legal cases challenging data sharing reach courts. Codes of conduct could facilitate data sharing in Europe and better connect it to global health research. This commentary explains the potential of codes of conduct for addressees and drafters. Codes are no panacea though; other measures may be necessary to ensure that Europe remains collaborative and competitive in biomedical research. Nevertheless, codes of conduct would bring immediate benefits and, in the long term, could foster a true European ecosystem for joint biomedical research and easier international data sharing. John Wiley and Sons Inc. 2020-02-18 2020-03-06 /pmc/articles/PMC7059003/ /pubmed/32072760 http://dx.doi.org/10.15252/emmm.201911421 Text en © 2020 The Authors. Published under the terms of the CC BY 4.0 license This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Opinion
Molnár‐Gábor, Fruzsina
Korbel, Jan O
Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
title Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
title_full Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
title_fullStr Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
title_full_unstemmed Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
title_short Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
title_sort genomic data sharing in europe is stumbling—could a code of conduct prevent its fall?
topic Opinion
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7059003/
https://www.ncbi.nlm.nih.gov/pubmed/32072760
http://dx.doi.org/10.15252/emmm.201911421
work_keys_str_mv AT molnargaborfruzsina genomicdatasharingineuropeisstumblingcouldacodeofconductpreventitsfall
AT korbeljano genomicdatasharingineuropeisstumblingcouldacodeofconductpreventitsfall