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Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities
Sudden cardiac arrest (SCA) has a devastating impact on both the family of the patient with SCA and his or her community. Because of various methodological differences between studies, reported incidence rates for SCA can vary widely, emphasizing the lack of clarity with respect to the true scope of...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063603/ https://www.ncbi.nlm.nih.gov/pubmed/32159084 http://dx.doi.org/10.1016/j.cjco.2019.01.005 |
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author | Allan, Katherine Dorian, Paul Lin, Steve |
author_facet | Allan, Katherine Dorian, Paul Lin, Steve |
author_sort | Allan, Katherine |
collection | PubMed |
description | Sudden cardiac arrest (SCA) has a devastating impact on both the family of the patient with SCA and his or her community. Because of various methodological differences between studies, reported incidence rates for SCA can vary widely, emphasizing the lack of clarity with respect to the true scope of this phenomenon. In recognition of the importance of accurately ascertaining the incidence and causes of SCA, there have been repeated calls for the development of national, prospective, population-based registries that use uniform definitions and multiple source methods to confirm cases. In this article, we discuss the challenges and opportunities in establishing a pan-Canadian registry and how its development will provide data on the current knowledge and treatment gaps to ultimately help reduce the burden of SCA in Canada. |
format | Online Article Text |
id | pubmed-7063603 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-70636032020-03-10 Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities Allan, Katherine Dorian, Paul Lin, Steve CJC Open Review Sudden cardiac arrest (SCA) has a devastating impact on both the family of the patient with SCA and his or her community. Because of various methodological differences between studies, reported incidence rates for SCA can vary widely, emphasizing the lack of clarity with respect to the true scope of this phenomenon. In recognition of the importance of accurately ascertaining the incidence and causes of SCA, there have been repeated calls for the development of national, prospective, population-based registries that use uniform definitions and multiple source methods to confirm cases. In this article, we discuss the challenges and opportunities in establishing a pan-Canadian registry and how its development will provide data on the current knowledge and treatment gaps to ultimately help reduce the burden of SCA in Canada. Elsevier 2019-02-20 /pmc/articles/PMC7063603/ /pubmed/32159084 http://dx.doi.org/10.1016/j.cjco.2019.01.005 Text en © 2019 Canadian Cardiovascular Society. Published by Elsevier Inc. http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
spellingShingle | Review Allan, Katherine Dorian, Paul Lin, Steve Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities |
title | Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities |
title_full | Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities |
title_fullStr | Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities |
title_full_unstemmed | Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities |
title_short | Developing a Pan-Canadian Registry of Sudden Cardiac Arrest: Challenges and Opportunities |
title_sort | developing a pan-canadian registry of sudden cardiac arrest: challenges and opportunities |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063603/ https://www.ncbi.nlm.nih.gov/pubmed/32159084 http://dx.doi.org/10.1016/j.cjco.2019.01.005 |
work_keys_str_mv | AT allankatherine developingapancanadianregistryofsuddencardiacarrestchallengesandopportunities AT dorianpaul developingapancanadianregistryofsuddencardiacarrestchallengesandopportunities AT linsteve developingapancanadianregistryofsuddencardiacarrestchallengesandopportunities AT developingapancanadianregistryofsuddencardiacarrestchallengesandopportunities |