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Foot care in epidermolysis bullosa: evidence‐based guideline

This guideline was designed to provide service providers and users with an evidence‐based set of current best practice guidelines for people and their families and carers, living with epidermolysis bullosa (EB). A systematic literature review relating to the podiatric care of patients with EB was un...

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Autores principales: Khan, M.T., O'Sullivan, M., Faitli, B., Mellerio, J.E., Fawkes, R., Wood, M., Hubbard, L.D., Harris, A.G., Iacobaccio, L., Vlahovic, T., James, L., Brains, L., Fitzpatrick, M., Mayre‐Chilton, K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7065089/
https://www.ncbi.nlm.nih.gov/pubmed/31397882
http://dx.doi.org/10.1111/bjd.18381
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author Khan, M.T.
O'Sullivan, M.
Faitli, B.
Mellerio, J.E.
Fawkes, R.
Wood, M.
Hubbard, L.D.
Harris, A.G.
Iacobaccio, L.
Vlahovic, T.
James, L.
Brains, L.
Fitzpatrick, M.
Mayre‐Chilton, K.
author_facet Khan, M.T.
O'Sullivan, M.
Faitli, B.
Mellerio, J.E.
Fawkes, R.
Wood, M.
Hubbard, L.D.
Harris, A.G.
Iacobaccio, L.
Vlahovic, T.
James, L.
Brains, L.
Fitzpatrick, M.
Mayre‐Chilton, K.
author_sort Khan, M.T.
collection PubMed
description This guideline was designed to provide service providers and users with an evidence‐based set of current best practice guidelines for people and their families and carers, living with epidermolysis bullosa (EB). A systematic literature review relating to the podiatric care of patients with EB was undertaken. Search terms were used, for which the most recent articles relating to podiatric treatment were identified from as early as 1979 to the present day, across seven electronic search engines: MEDLINE, Wiley Online Library, Google Scholar, Athens, ResearchGate, Net and PubFacts.com. The Scottish Intercollegiate Guidelines Network (SIGN) methodology was used. The first guideline draft was analysed and discussed by clinical experts, methodologists and patients and their representatives at four panel meetings. The resulting document went through an external review process by a panel of experts, other healthcare professionals, patient representatives and lay reviewers. The final document will be piloted in three different centres in the U.K. and Australia. Following an EB community international survey the outcomes indicated six main areas that the community indicated as a priority to foot management. These include blistering and wound management, exploring the most suitable footwear and hosiery for EB, management of dystrophic nails, hyperkeratosis (callus), maintaining mobility and fusion of toes (pseudosyndactyly). The evidence here is limited but several interventions currently practised by podiatrists show positive outcomes.
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spelling pubmed-70650892020-03-16 Foot care in epidermolysis bullosa: evidence‐based guideline Khan, M.T. O'Sullivan, M. Faitli, B. Mellerio, J.E. Fawkes, R. Wood, M. Hubbard, L.D. Harris, A.G. Iacobaccio, L. Vlahovic, T. James, L. Brains, L. Fitzpatrick, M. Mayre‐Chilton, K. Br J Dermatol Evidence‐Based Dermatology This guideline was designed to provide service providers and users with an evidence‐based set of current best practice guidelines for people and their families and carers, living with epidermolysis bullosa (EB). A systematic literature review relating to the podiatric care of patients with EB was undertaken. Search terms were used, for which the most recent articles relating to podiatric treatment were identified from as early as 1979 to the present day, across seven electronic search engines: MEDLINE, Wiley Online Library, Google Scholar, Athens, ResearchGate, Net and PubFacts.com. The Scottish Intercollegiate Guidelines Network (SIGN) methodology was used. The first guideline draft was analysed and discussed by clinical experts, methodologists and patients and their representatives at four panel meetings. The resulting document went through an external review process by a panel of experts, other healthcare professionals, patient representatives and lay reviewers. The final document will be piloted in three different centres in the U.K. and Australia. Following an EB community international survey the outcomes indicated six main areas that the community indicated as a priority to foot management. These include blistering and wound management, exploring the most suitable footwear and hosiery for EB, management of dystrophic nails, hyperkeratosis (callus), maintaining mobility and fusion of toes (pseudosyndactyly). The evidence here is limited but several interventions currently practised by podiatrists show positive outcomes. John Wiley and Sons Inc. 2019-10-23 2020-03 /pmc/articles/PMC7065089/ /pubmed/31397882 http://dx.doi.org/10.1111/bjd.18381 Text en © 2019 The Authors. British Journal of Dermatology published by John Wiley & Sons Ltd on behalf of British Association of Dermatologists. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Evidence‐Based Dermatology
Khan, M.T.
O'Sullivan, M.
Faitli, B.
Mellerio, J.E.
Fawkes, R.
Wood, M.
Hubbard, L.D.
Harris, A.G.
Iacobaccio, L.
Vlahovic, T.
James, L.
Brains, L.
Fitzpatrick, M.
Mayre‐Chilton, K.
Foot care in epidermolysis bullosa: evidence‐based guideline
title Foot care in epidermolysis bullosa: evidence‐based guideline
title_full Foot care in epidermolysis bullosa: evidence‐based guideline
title_fullStr Foot care in epidermolysis bullosa: evidence‐based guideline
title_full_unstemmed Foot care in epidermolysis bullosa: evidence‐based guideline
title_short Foot care in epidermolysis bullosa: evidence‐based guideline
title_sort foot care in epidermolysis bullosa: evidence‐based guideline
topic Evidence‐Based Dermatology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7065089/
https://www.ncbi.nlm.nih.gov/pubmed/31397882
http://dx.doi.org/10.1111/bjd.18381
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