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How do mothers feel? Life with children with congenital Zika syndrome

OBJECTIVE: To describe the repercussions, from the perspectives of caregiver mothers, of confirmed congenital Zika syndrome (CZS) in their offspring. METHODS: A descriptive‐exploratory study with a qualitative approach was carried out in the state of Espírito Santo in southeastern Brazil, with 25 wo...

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Autores principales: Freitas, Paula S.S., Soares, Gabriella B., Mocelin, Helaine J.S., Lamonato, Larissa C.X.L., Sales, Carolina M.M., Linde‐Arias, Ana R., Bussinger, Elda C.A., Maciel, Ethel L.N.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7065199/
https://www.ncbi.nlm.nih.gov/pubmed/31975400
http://dx.doi.org/10.1002/ijgo.13044
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author Freitas, Paula S.S.
Soares, Gabriella B.
Mocelin, Helaine J.S.
Lamonato, Larissa C.X.L.
Sales, Carolina M.M.
Linde‐Arias, Ana R.
Bussinger, Elda C.A.
Maciel, Ethel L.N.
author_facet Freitas, Paula S.S.
Soares, Gabriella B.
Mocelin, Helaine J.S.
Lamonato, Larissa C.X.L.
Sales, Carolina M.M.
Linde‐Arias, Ana R.
Bussinger, Elda C.A.
Maciel, Ethel L.N.
author_sort Freitas, Paula S.S.
collection PubMed
description OBJECTIVE: To describe the repercussions, from the perspectives of caregiver mothers, of confirmed congenital Zika syndrome (CZS) in their offspring. METHODS: A descriptive‐exploratory study with a qualitative approach was carried out in the state of Espírito Santo in southeastern Brazil, with 25 women who had a child diagnosed with CZS. RESULTS: Emerging themes from the content analysis were grouped into two categories: (1) inequalities experienced by mothers, including social inequality, poverty, and gender inequality; (2) the impact of a child with CZS on mothering, including feelings at the time of diagnosis, maternal isolation and mental health, experiences of stigma and prejudice, and exhausting itineraries searching for therapeutic care. CONCLUSION: The repercussions of CZS were a huge burden on already vulnerable women, and social inequalities and poverty were important markers in the mothers’ reports. Many of the families affected by CZS already lived in precarious social conditions and these conditions were exacerbated further. Robust public and social policies to support these mothers need effective implementation given that babies born with CZS need long‐term care and support.
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spelling pubmed-70651992020-03-16 How do mothers feel? Life with children with congenital Zika syndrome Freitas, Paula S.S. Soares, Gabriella B. Mocelin, Helaine J.S. Lamonato, Larissa C.X.L. Sales, Carolina M.M. Linde‐Arias, Ana R. Bussinger, Elda C.A. Maciel, Ethel L.N. Int J Gynaecol Obstet Supplement Articles OBJECTIVE: To describe the repercussions, from the perspectives of caregiver mothers, of confirmed congenital Zika syndrome (CZS) in their offspring. METHODS: A descriptive‐exploratory study with a qualitative approach was carried out in the state of Espírito Santo in southeastern Brazil, with 25 women who had a child diagnosed with CZS. RESULTS: Emerging themes from the content analysis were grouped into two categories: (1) inequalities experienced by mothers, including social inequality, poverty, and gender inequality; (2) the impact of a child with CZS on mothering, including feelings at the time of diagnosis, maternal isolation and mental health, experiences of stigma and prejudice, and exhausting itineraries searching for therapeutic care. CONCLUSION: The repercussions of CZS were a huge burden on already vulnerable women, and social inequalities and poverty were important markers in the mothers’ reports. Many of the families affected by CZS already lived in precarious social conditions and these conditions were exacerbated further. Robust public and social policies to support these mothers need effective implementation given that babies born with CZS need long‐term care and support. John Wiley and Sons Inc. 2020-01-23 2020-01 /pmc/articles/PMC7065199/ /pubmed/31975400 http://dx.doi.org/10.1002/ijgo.13044 Text en © 2020 World Health Organization; licensed by John Wiley & Sons Ltd on behalf of International Federation of Gynecology and Obstetrics This is an open access article distributed under the terms of the https://creativecommons.org/licenses/by/3.0/igo/legalcode which permits unrestricted use, distribution and reproduction in any medium, provided that the original work is properly cited. In any reproduction of this article there should not be any suggestion that WHO or the article endorse any specific organization or products. The use of the WHO logo is not permitted. This notice should be preserved along with the article’s URL.
spellingShingle Supplement Articles
Freitas, Paula S.S.
Soares, Gabriella B.
Mocelin, Helaine J.S.
Lamonato, Larissa C.X.L.
Sales, Carolina M.M.
Linde‐Arias, Ana R.
Bussinger, Elda C.A.
Maciel, Ethel L.N.
How do mothers feel? Life with children with congenital Zika syndrome
title How do mothers feel? Life with children with congenital Zika syndrome
title_full How do mothers feel? Life with children with congenital Zika syndrome
title_fullStr How do mothers feel? Life with children with congenital Zika syndrome
title_full_unstemmed How do mothers feel? Life with children with congenital Zika syndrome
title_short How do mothers feel? Life with children with congenital Zika syndrome
title_sort how do mothers feel? life with children with congenital zika syndrome
topic Supplement Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7065199/
https://www.ncbi.nlm.nih.gov/pubmed/31975400
http://dx.doi.org/10.1002/ijgo.13044
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