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Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review

BACKGROUND: Spinal muscular atrophy (SMA) is a neurodegenerative disease that has a substantial and multifaceted burden on affected adults. While advances in supportive care and therapies are rapidly reshaping the therapeutic environment, these efforts have largely centered on pediatric populations....

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Detalles Bibliográficos
Autores principales: Wan, Hamish W. Y., Carey, Kate A., D’Silva, Arlene, Vucic, Steve, Kiernan, Matthew C., Kasparian, Nadine A., Farrar, Michelle A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7068910/
https://www.ncbi.nlm.nih.gov/pubmed/32164772
http://dx.doi.org/10.1186/s13023-020-1339-3