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Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review
BACKGROUND: Spinal muscular atrophy (SMA) is a neurodegenerative disease that has a substantial and multifaceted burden on affected adults. While advances in supportive care and therapies are rapidly reshaping the therapeutic environment, these efforts have largely centered on pediatric populations....
Autores principales: | Wan, Hamish W. Y., Carey, Kate A., D’Silva, Arlene, Vucic, Steve, Kiernan, Matthew C., Kasparian, Nadine A., Farrar, Michelle A. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7068910/ https://www.ncbi.nlm.nih.gov/pubmed/32164772 http://dx.doi.org/10.1186/s13023-020-1339-3 |
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