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Transitions to adulthood: self‐governance and disciplining in the making of patient citizens

Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health‐related actions in response to life changes. Young people's health is increasingly recognised...

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Detalles Bibliográficos
Autores principales: Renedo, Alicia, Miles, Sam, Marston, Cicely
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7078962/
https://www.ncbi.nlm.nih.gov/pubmed/31663619
http://dx.doi.org/10.1111/1467-9566.13019
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author Renedo, Alicia
Miles, Sam
Marston, Cicely
author_facet Renedo, Alicia
Miles, Sam
Marston, Cicely
author_sort Renedo, Alicia
collection PubMed
description Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health‐related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a longitudinal interview study with young people with sickle cell disease to explore how young people define new identities as they transition to adulthood. We show how ‘disciplining at a distance’ via healthcare self‐management discourses and neoliberal norms governing adolescence play out in the tensions participants encounter when they are crafting new identities. Health transitions involve struggles to negotiate competing demands for self‐discipline. It is crucial to create enabling spaces for young people to protect their health while still developing identities that help them achieve life goals.
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spelling pubmed-70789622020-03-19 Transitions to adulthood: self‐governance and disciplining in the making of patient citizens Renedo, Alicia Miles, Sam Marston, Cicely Sociol Health Illn Original Articles Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health‐related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a longitudinal interview study with young people with sickle cell disease to explore how young people define new identities as they transition to adulthood. We show how ‘disciplining at a distance’ via healthcare self‐management discourses and neoliberal norms governing adolescence play out in the tensions participants encounter when they are crafting new identities. Health transitions involve struggles to negotiate competing demands for self‐discipline. It is crucial to create enabling spaces for young people to protect their health while still developing identities that help them achieve life goals. John Wiley and Sons Inc. 2019-10-30 2020-03 /pmc/articles/PMC7078962/ /pubmed/31663619 http://dx.doi.org/10.1111/1467-9566.13019 Text en © 2019 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Renedo, Alicia
Miles, Sam
Marston, Cicely
Transitions to adulthood: self‐governance and disciplining in the making of patient citizens
title Transitions to adulthood: self‐governance and disciplining in the making of patient citizens
title_full Transitions to adulthood: self‐governance and disciplining in the making of patient citizens
title_fullStr Transitions to adulthood: self‐governance and disciplining in the making of patient citizens
title_full_unstemmed Transitions to adulthood: self‐governance and disciplining in the making of patient citizens
title_short Transitions to adulthood: self‐governance and disciplining in the making of patient citizens
title_sort transitions to adulthood: self‐governance and disciplining in the making of patient citizens
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7078962/
https://www.ncbi.nlm.nih.gov/pubmed/31663619
http://dx.doi.org/10.1111/1467-9566.13019
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