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Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHOD...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley & Sons, Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7079080/ https://www.ncbi.nlm.nih.gov/pubmed/31833121 http://dx.doi.org/10.1002/hed.26027 |
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author | Rogers, Simon N. Alvear, Alvaro Anesi, Alexandre Babin, Emmanuel Balik, Ali Batstone, Martin Brockmeyer, Phillipp Carrasco, Claudia Celedon Chien, Chih‐Yen Chirila, Magdalena Dholam, Kanchan P. Doss, Jennifer G. Finizia, Caterina Ghani, Wan M. Nabilah Gurav, Sandeep V. Kadir, Kathreena Kolator, Mateusz Lima, Roberto Lin, Yu‐Tsai Nhongo, Simon Ozdemir‐Karatas, Meltem Peker, Kadriye Pesic, Zoran Ransy, Pierre Santos, Izabella Schliephake, Henning Shah, Ketan Souza, Fernanda Sunil, Geethu Thankappan, Krishnakumar Ehrsson, Ylva Tiblom Tiple, Cristina Tuomi, Lisa Valerini, Sara Lara, Pablo Vasquez Zatoński, Tomasz Lowe, Derek |
author_facet | Rogers, Simon N. Alvear, Alvaro Anesi, Alexandre Babin, Emmanuel Balik, Ali Batstone, Martin Brockmeyer, Phillipp Carrasco, Claudia Celedon Chien, Chih‐Yen Chirila, Magdalena Dholam, Kanchan P. Doss, Jennifer G. Finizia, Caterina Ghani, Wan M. Nabilah Gurav, Sandeep V. Kadir, Kathreena Kolator, Mateusz Lima, Roberto Lin, Yu‐Tsai Nhongo, Simon Ozdemir‐Karatas, Meltem Peker, Kadriye Pesic, Zoran Ransy, Pierre Santos, Izabella Schliephake, Henning Shah, Ketan Souza, Fernanda Sunil, Geethu Thankappan, Krishnakumar Ehrsson, Ylva Tiblom Tiple, Cristina Tuomi, Lisa Valerini, Sara Lara, Pablo Vasquez Zatoński, Tomasz Lowe, Derek |
author_sort | Rogers, Simon N. |
collection | PubMed |
description | BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHODS: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. RESULTS: There were 2136 patients with a median total number of PCI items selected of 5 (2‐10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty‐five percent (524) reported less than good QOL. CONCLUSION: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case‐mix variables. There was a strong progressive association between the number of PCI items and QOL. |
format | Online Article Text |
id | pubmed-7079080 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | John Wiley & Sons, Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-70790802020-03-19 Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world Rogers, Simon N. Alvear, Alvaro Anesi, Alexandre Babin, Emmanuel Balik, Ali Batstone, Martin Brockmeyer, Phillipp Carrasco, Claudia Celedon Chien, Chih‐Yen Chirila, Magdalena Dholam, Kanchan P. Doss, Jennifer G. Finizia, Caterina Ghani, Wan M. Nabilah Gurav, Sandeep V. Kadir, Kathreena Kolator, Mateusz Lima, Roberto Lin, Yu‐Tsai Nhongo, Simon Ozdemir‐Karatas, Meltem Peker, Kadriye Pesic, Zoran Ransy, Pierre Santos, Izabella Schliephake, Henning Shah, Ketan Souza, Fernanda Sunil, Geethu Thankappan, Krishnakumar Ehrsson, Ylva Tiblom Tiple, Cristina Tuomi, Lisa Valerini, Sara Lara, Pablo Vasquez Zatoński, Tomasz Lowe, Derek Head Neck Original Articles BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHODS: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. RESULTS: There were 2136 patients with a median total number of PCI items selected of 5 (2‐10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty‐five percent (524) reported less than good QOL. CONCLUSION: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case‐mix variables. There was a strong progressive association between the number of PCI items and QOL. John Wiley & Sons, Inc. 2019-12-13 2020-03 /pmc/articles/PMC7079080/ /pubmed/31833121 http://dx.doi.org/10.1002/hed.26027 Text en © 2019 The Authors. Head & Neck published by Wiley Periodicals, Inc. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Original Articles Rogers, Simon N. Alvear, Alvaro Anesi, Alexandre Babin, Emmanuel Balik, Ali Batstone, Martin Brockmeyer, Phillipp Carrasco, Claudia Celedon Chien, Chih‐Yen Chirila, Magdalena Dholam, Kanchan P. Doss, Jennifer G. Finizia, Caterina Ghani, Wan M. Nabilah Gurav, Sandeep V. Kadir, Kathreena Kolator, Mateusz Lima, Roberto Lin, Yu‐Tsai Nhongo, Simon Ozdemir‐Karatas, Meltem Peker, Kadriye Pesic, Zoran Ransy, Pierre Santos, Izabella Schliephake, Henning Shah, Ketan Souza, Fernanda Sunil, Geethu Thankappan, Krishnakumar Ehrsson, Ylva Tiblom Tiple, Cristina Tuomi, Lisa Valerini, Sara Lara, Pablo Vasquez Zatoński, Tomasz Lowe, Derek Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
title | Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
title_full | Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
title_fullStr | Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
title_full_unstemmed | Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
title_short | Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
title_sort | variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7079080/ https://www.ncbi.nlm.nih.gov/pubmed/31833121 http://dx.doi.org/10.1002/hed.26027 |
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