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Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world

BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHOD...

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Autores principales: Rogers, Simon N., Alvear, Alvaro, Anesi, Alexandre, Babin, Emmanuel, Balik, Ali, Batstone, Martin, Brockmeyer, Phillipp, Carrasco, Claudia Celedon, Chien, Chih‐Yen, Chirila, Magdalena, Dholam, Kanchan P., Doss, Jennifer G., Finizia, Caterina, Ghani, Wan M. Nabilah, Gurav, Sandeep V., Kadir, Kathreena, Kolator, Mateusz, Lima, Roberto, Lin, Yu‐Tsai, Nhongo, Simon, Ozdemir‐Karatas, Meltem, Peker, Kadriye, Pesic, Zoran, Ransy, Pierre, Santos, Izabella, Schliephake, Henning, Shah, Ketan, Souza, Fernanda, Sunil, Geethu, Thankappan, Krishnakumar, Ehrsson, Ylva Tiblom, Tiple, Cristina, Tuomi, Lisa, Valerini, Sara, Lara, Pablo Vasquez, Zatoński, Tomasz, Lowe, Derek
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7079080/
https://www.ncbi.nlm.nih.gov/pubmed/31833121
http://dx.doi.org/10.1002/hed.26027
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author Rogers, Simon N.
Alvear, Alvaro
Anesi, Alexandre
Babin, Emmanuel
Balik, Ali
Batstone, Martin
Brockmeyer, Phillipp
Carrasco, Claudia Celedon
Chien, Chih‐Yen
Chirila, Magdalena
Dholam, Kanchan P.
Doss, Jennifer G.
Finizia, Caterina
Ghani, Wan M. Nabilah
Gurav, Sandeep V.
Kadir, Kathreena
Kolator, Mateusz
Lima, Roberto
Lin, Yu‐Tsai
Nhongo, Simon
Ozdemir‐Karatas, Meltem
Peker, Kadriye
Pesic, Zoran
Ransy, Pierre
Santos, Izabella
Schliephake, Henning
Shah, Ketan
Souza, Fernanda
Sunil, Geethu
Thankappan, Krishnakumar
Ehrsson, Ylva Tiblom
Tiple, Cristina
Tuomi, Lisa
Valerini, Sara
Lara, Pablo Vasquez
Zatoński, Tomasz
Lowe, Derek
author_facet Rogers, Simon N.
Alvear, Alvaro
Anesi, Alexandre
Babin, Emmanuel
Balik, Ali
Batstone, Martin
Brockmeyer, Phillipp
Carrasco, Claudia Celedon
Chien, Chih‐Yen
Chirila, Magdalena
Dholam, Kanchan P.
Doss, Jennifer G.
Finizia, Caterina
Ghani, Wan M. Nabilah
Gurav, Sandeep V.
Kadir, Kathreena
Kolator, Mateusz
Lima, Roberto
Lin, Yu‐Tsai
Nhongo, Simon
Ozdemir‐Karatas, Meltem
Peker, Kadriye
Pesic, Zoran
Ransy, Pierre
Santos, Izabella
Schliephake, Henning
Shah, Ketan
Souza, Fernanda
Sunil, Geethu
Thankappan, Krishnakumar
Ehrsson, Ylva Tiblom
Tiple, Cristina
Tuomi, Lisa
Valerini, Sara
Lara, Pablo Vasquez
Zatoński, Tomasz
Lowe, Derek
author_sort Rogers, Simon N.
collection PubMed
description BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHODS: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. RESULTS: There were 2136 patients with a median total number of PCI items selected of 5 (2‐10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty‐five percent (524) reported less than good QOL. CONCLUSION: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case‐mix variables. There was a strong progressive association between the number of PCI items and QOL.
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spelling pubmed-70790802020-03-19 Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world Rogers, Simon N. Alvear, Alvaro Anesi, Alexandre Babin, Emmanuel Balik, Ali Batstone, Martin Brockmeyer, Phillipp Carrasco, Claudia Celedon Chien, Chih‐Yen Chirila, Magdalena Dholam, Kanchan P. Doss, Jennifer G. Finizia, Caterina Ghani, Wan M. Nabilah Gurav, Sandeep V. Kadir, Kathreena Kolator, Mateusz Lima, Roberto Lin, Yu‐Tsai Nhongo, Simon Ozdemir‐Karatas, Meltem Peker, Kadriye Pesic, Zoran Ransy, Pierre Santos, Izabella Schliephake, Henning Shah, Ketan Souza, Fernanda Sunil, Geethu Thankappan, Krishnakumar Ehrsson, Ylva Tiblom Tiple, Cristina Tuomi, Lisa Valerini, Sara Lara, Pablo Vasquez Zatoński, Tomasz Lowe, Derek Head Neck Original Articles BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHODS: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. RESULTS: There were 2136 patients with a median total number of PCI items selected of 5 (2‐10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty‐five percent (524) reported less than good QOL. CONCLUSION: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case‐mix variables. There was a strong progressive association between the number of PCI items and QOL. John Wiley & Sons, Inc. 2019-12-13 2020-03 /pmc/articles/PMC7079080/ /pubmed/31833121 http://dx.doi.org/10.1002/hed.26027 Text en © 2019 The Authors. Head & Neck published by Wiley Periodicals, Inc. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Rogers, Simon N.
Alvear, Alvaro
Anesi, Alexandre
Babin, Emmanuel
Balik, Ali
Batstone, Martin
Brockmeyer, Phillipp
Carrasco, Claudia Celedon
Chien, Chih‐Yen
Chirila, Magdalena
Dholam, Kanchan P.
Doss, Jennifer G.
Finizia, Caterina
Ghani, Wan M. Nabilah
Gurav, Sandeep V.
Kadir, Kathreena
Kolator, Mateusz
Lima, Roberto
Lin, Yu‐Tsai
Nhongo, Simon
Ozdemir‐Karatas, Meltem
Peker, Kadriye
Pesic, Zoran
Ransy, Pierre
Santos, Izabella
Schliephake, Henning
Shah, Ketan
Souza, Fernanda
Sunil, Geethu
Thankappan, Krishnakumar
Ehrsson, Ylva Tiblom
Tiple, Cristina
Tuomi, Lisa
Valerini, Sara
Lara, Pablo Vasquez
Zatoński, Tomasz
Lowe, Derek
Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
title Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
title_full Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
title_fullStr Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
title_full_unstemmed Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
title_short Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
title_sort variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7079080/
https://www.ncbi.nlm.nih.gov/pubmed/31833121
http://dx.doi.org/10.1002/hed.26027
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