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Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review
The majority of biobank policies and consent forms do not address post-mortem use of data for medical research, thus causing uncertainty after research participants’ death. This systematic review identifies studies examining stakeholders’ perspectives on this issue. We conducted a search in MEDLINE,...
Autores principales: | Bak, Marieke A. R., Ploem, M. Corrette, Ateşyürek, Hakan, Blom, Marieke T., Tan, Hanno L., Willems, Dick L. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7080773/ https://www.ncbi.nlm.nih.gov/pubmed/31527854 http://dx.doi.org/10.1038/s41431-019-0503-5 |
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