Cargando…
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
Public acceptance is critical for sharing of genomic data at scale. This paper examines how acceptance of data sharing pertains to the perceived similarities and differences between DNA and other forms of personal data. It explores the perceptions of representative publics from the USA, Canada, the...
Autores principales: | Middleton, Anna, Milne, Richard, Howard, Heidi, Niemiec, Emilia, Robarts, Lauren, Critchley, Christine, Nicol, Dianne, Prainsack, Barbara, Atutornu, Jerome, Vears, Danya F., Smith, James, Steed, Claire, Bevan, Paul, Scott, Erick R., Bobe, Jason, Goodhand, Peter, Kleiderman, Erika, Thorogood, Adrian, Morley, Katherine I. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7080803/ https://www.ncbi.nlm.nih.gov/pubmed/31784701 http://dx.doi.org/10.1038/s41431-019-0550-y |
Ejemplares similares
-
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
por: Milne, Richard, et al.
Publicado: (2019) -
Attitudes of publics who are unwilling to donate DNA data for research
por: Middleton, Anna, et al.
Publicado: (2019) -
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
por: Middleton, Anna, et al.
Publicado: (2020) -
APPLaUD: access for patients and participants to individual level uninterpreted genomic data
por: Thorogood, Adrian, et al.
Publicado: (2018) -
Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
por: Milne, Richard, et al.
Publicado: (2021)