Cargando…

German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192)

Genetic information is increasingly provided outside of the traditional clinical setting, allowing users to access it directly via specialized online platforms. This development is possibly resulting in changing ethical and social challenges for users of predictive genetic tests. Little is known abo...

Descripción completa

Detalles Bibliográficos
Autores principales:	Wöhlke, Sabine, Schaper, Manuel, Oliveri, Serena, Cutica, Ilaria, Spinella, Francesca, Pravettoni, Gabriella, Steinberger, Daniela, Schicktanz, Silke
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2020
Materias:	Genetics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7099127/ https://www.ncbi.nlm.nih.gov/pubmed/32265977 http://dx.doi.org/10.3389/fgene.2020.00102

Ejemplares similares

Health Orientation, Knowledge, and Attitudes toward Genetic Testing and Personalized Genomic Services: Preliminary Data from an Italian Sample
por: Oliveri, Serena, et al.
Publicado: (2016)

Health orientation and individual tendencies of a sample of Italian genetic testing consumers
por: Oliveri, Serena, et al.
Publicado: (2020)

Genetic testing users in Italy and Germany: Health orientation, health‐related habits, and psychological profile
por: Ongaro, Giulia, et al.
Publicado: (2022)

What people really change after genetic testing (GT) performed in private labs: results from an Italian study
por: Oliveri, Serena, et al.
Publicado: (2021)

My Data, My Choice? – German Patient Organizations’ Attitudes towards Big Data-Driven Approaches in Personalized Medicine. An Empirical-Ethical Study
por: Rauter, Carolin Martina, et al.
Publicado: (2021)

Genetic Testing Consumers in Italy: A Preliminary Investigation of the Socio-Demographic Profile, Health-Related Habits, and Decision Purposes
por: Oliveri, Serena, et al.
Publicado: (2020)

Decision-making process about prenatal genetic screening: how deeply do moms-to-be want to know from Non-Invasive Prenatal Testing?
por: Oliveri, Serena, et al.
Publicado: (2023)

Exploring public attitude toward biofeedback technologies: Knowledge, preferences and personality tendencies
por: Russo, Gaetano A., et al.
Publicado: (2020)

How Uncertainty Influences Lay People’s Attitudes and Risk Perceptions Concerning Predictive Genetic Testing and Risk Communication
por: Wöhlke, Sabine, et al.
Publicado: (2019)

The psychometric properties of the Italian adaptation of the Health Orientation Scale (HOS)
por: Masiero, M., et al.
Publicado: (2020)

Serious Games for Improving Genetic Literacy and Genetic Risk Awareness in the General Public: Protocol for a Randomized Controlled Trial
por: Oliveri, Serena, et al.
Publicado: (2018)

Empowering Communication in Emergency Contexts: Reflections From the Italian Coronavirus Outbreak
por: Brivio, Eleonora, et al.
Publicado: (2020)

Is There Evidence for Neurocognitive Dysfunctions in Patients with Postnatal HIV Infection? A Review on the Cohort of Hemophilia Patients
por: Riva, Silvia, et al.
Publicado: (2014)

Incidence of PTSD and generalized anxiety symptoms during the first wave of COVID-19 outbreak: an exploratory study of a large sample of the Italian population
por: Brivio, Eleonora, et al.
Publicado: (2021)

Decisions and the involvement of cancer patient survivors: a moral imperative
por: Pravettoni, Gabriella, et al.
Publicado: (2016)

Impact of gender and professional education on attitudes towards financial incentives for organ donation: results of a survey among 755 students of medicine and economics in Germany
por: Inthorn, Julia, et al.
Publicado: (2014)

Caregiving and Shared Decision Making in Breast and Prostate Cancer Patients: A Systematic Review
por: Cincidda, Clizia, et al.
Publicado: (2023)

The emergence of temporality in attitudes towards cryo-fertility: a case study comparing German and Israeli social egg freezing users
por: Rimon-Zarfaty, Nitzan, et al.
Publicado: (2022)

Medicine, market and communication: ethical considerations in regard to persuasive communication in direct-to-consumer genetic testing services
por: Schaper, Manuel, et al.
Publicado: (2018)

Patient Preferences as Guidance for Information Framing in a Medical Shared Decision-Making Approach: The Bridge Between Nudging and Patient Preferences
por: Bailo, Luca, et al.
Publicado: (2019)

The "spare parts person"? Conceptions of the human body and their implications for public attitudes towards organ donation and organ sale
por: Schweda, Mark, et al.
Publicado: (2009)

The Experts’ Advice: Prevention and Responsibility in German Media and Scientific Discourses on Dementia
por: Petersen, Niklas, et al.
Publicado: (2021)

Tobacco Smoking Behaviors in Cancer Survivors: The Mediation Effect of Personality and Emotional Intelligence
por: Durosini, Ilaria, et al.
Publicado: (2022)

Practical and Ethical Aspects of Advance Research Directives for Research on Healthy Aging: German and Israeli Professionals’ Perspectives
por: Werner, Perla, et al.
Publicado: (2018)

Personality Traits and Cardiotoxicity Arising From Cancer Treatments: An Hypothesized Relationship
por: Durosini, Ilaria, et al.
Publicado: (2021)

Personal Fable: Optimistic Bias in Cigarette Smokers
por: Masiero, Marianna, et al.
Publicado: (2015)

Beyond cultural stereotyping: views on end-of-life decision making among religious and secular persons in the USA, Germany, and Israel
por: Schweda, Mark, et al.
Publicado: (2017)

Moral motivation regarding dementia risk testing among affected persons in Germany and Israel
por: Alpinar-Sencan, Zümrüt, et al.
Publicado: (2022)

A Systematic Review of the Psychological Implications of Genetic Testing: A Comparative Analysis Among Cardiovascular, Neurodegenerative and Cancer Diseases
por: Oliveri, Serena, et al.
Publicado: (2018)

The role of caregivers in the clinical pathway of patients newly diagnosed with breast and prostate cancer: A study protocol
por: Cincidda, Clizia, et al.
Publicado: (2022)

“Blood for Blood”? Personal Motives and Deterrents for Blood Donation in the German Population
por: Greffin, Klara, et al.
Publicado: (2021)

Personalized Video Summarization Based Exclusively on User Preferences
por: Panagiotakis, Costas, et al.
Publicado: (2020)

What Matters Most to Lung Cancer Patients? A Qualitative Study in Italy and Belgium to Investigate Patient Preferences
por: Petrocchi, Serena, et al.
Publicado: (2021)

Opportunities and Challenges of Web-Based and Remotely Administered Surveys for Patient Preference Studies in a Vulnerable Population
por: Oliveri, Serena, et al.
Publicado: (2021)

Short video users’ personality traits and social sharing motivation
por: Da-yong, Zhang, et al.
Publicado: (2022)

Personalized diversification of complementary recommendations with user preference in online grocery
por: Ma, Luyi, et al.
Publicado: (2023)

Contribution to validation of the Italian version of work ability personal radar
por: Converso, Daniela, et al.
Publicado: (2022)

The Role of Frontal-Subcortical Circuitry in Neuropsychological Deficit of Attention: Hypothesis and Results in Two Coagulation Disorders
por: Riva, Silvia, et al.
Publicado: (2016)

Regulation strategies during COVID-19 quarantine: The mediating effect of worry on the links between coping strategies and anxiety
por: Cincidda, Clizia, et al.
Publicado: (2022)

Research across the disciplines: a road map for quality criteria in empirical ethics research
por: Mertz, Marcel, et al.
Publicado: (2014)

Cannot write session to /tmp/vufind_sessions/sess_19ps63khm6iumld6j6dojt8rtr