Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study

PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and tre...

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Autores principales: Stolk-Vos, Aline C., Kasigar, Hamasa, Nijmeijer, Karlijn J., Missotten, Tom O., Busschbach, Jan J., van de Klundert, Joris J., Kranenburg, Leonieke W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7106635/
https://www.ncbi.nlm.nih.gov/pubmed/32228570
http://dx.doi.org/10.1186/s12886-020-01388-y
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author Stolk-Vos, Aline C.
Kasigar, Hamasa
Nijmeijer, Karlijn J.
Missotten, Tom O.
Busschbach, Jan J.
van de Klundert, Joris J.
Kranenburg, Leonieke W.
author_facet Stolk-Vos, Aline C.
Kasigar, Hamasa
Nijmeijer, Karlijn J.
Missotten, Tom O.
Busschbach, Jan J.
van de Klundert, Joris J.
Kranenburg, Leonieke W.
author_sort Stolk-Vos, Aline C.
collection PubMed
description PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.
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spelling pubmed-71066352020-04-01 Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study Stolk-Vos, Aline C. Kasigar, Hamasa Nijmeijer, Karlijn J. Missotten, Tom O. Busschbach, Jan J. van de Klundert, Joris J. Kranenburg, Leonieke W. BMC Ophthalmol Research Article PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults. BioMed Central 2020-03-30 /pmc/articles/PMC7106635/ /pubmed/32228570 http://dx.doi.org/10.1186/s12886-020-01388-y Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Stolk-Vos, Aline C.
Kasigar, Hamasa
Nijmeijer, Karlijn J.
Missotten, Tom O.
Busschbach, Jan J.
van de Klundert, Joris J.
Kranenburg, Leonieke W.
Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
title Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
title_full Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
title_fullStr Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
title_full_unstemmed Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
title_short Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
title_sort outcomes in patients with chronic uveitis: which factors matter to patients? a qualitative study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7106635/
https://www.ncbi.nlm.nih.gov/pubmed/32228570
http://dx.doi.org/10.1186/s12886-020-01388-y
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